Okay,
So I have had this new website for a while now, I had just forgotten about it. It's called Disboom, connecting thousands of people with a disability together. It's a pretty helpful website; I have already joined. Here's the link:
Okay,
So I have had this new website for a while now, I had just forgotten about it. It's called Disboom, connecting thousands of people with a disability together. It's a pretty helpful website; I have already joined. Here's the link:
Okay,
So it just occurred to me that I forgot to tell you about one of the biggest changes in my life since Christmas. It's pretty important, since it allows me to get around more independently. You see, I recently got head controls. This is life altering for me since over the years I have noticed a increase in tightness in my arms. The tightness makes it pretty impossible for me to do anything these days.
Anyway, now I can go anywhere simply by moving my head. I have used this technology before, except it was not this advanced. Now the technology involves sensors so I don't have to press all the way back to go forward, left or right. I can also switch gears and speed simply by pressing a button placed behind my left elbow. In reverse, I turn off my chair by a button behind my right elbow.
Any questions?
Let me know.
Okay,
So it's been a long time since I updated you my readers. I'm still going strong working; but a couple of things in my personal life have happened to keep me to myself. I often wonder whether I take everything too personal as a result of me being a thinker. Something for me to ponder for a while. But then again, I can't help who I am.
As the new year continues, I pose this question to you. What's your resolution for the year? Do you believe it's possible to start fresh and began anew? As you think upon this, recall the following verses in the Bible
Ephesians 3:16- which says "I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being,"
Consider also 2 Corinthians 4: 16, which says, "Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. "
Food for thought.
Well,
As previously mentioned, I haven't been having the best of weeks. Therefore, I have decided to take a break until after the Christmas season is over. This will give me time to look back and reflect on the past year and how far I have come. It will also provide me with an opportunity to examine the purpose for this blog and where I see it ending up in the future. Please pray for me during this time as I am also encountering some personal struggles of my own.
Sincerely,
Debbie
Okay,
So I know I'm running a little behind on my posts this week. It's hard to believe that it's been almost 4 weeks since I've moved out on my own. For as much as living on my own was a dream , I never imagined it being so difficult. I mean, I have dealt with personal assistants before. How hard can it be??
My answer: A lot different than you would expect.
If you have been with me long enough, you may remember me writing about my personal assistance experiences in college You can always go back and take a look if you're interested. Anyway, those experiences provided a spring board for where I am today. Even with my background, nothing could have prepared me for this experience living on my own.. I will try to examine some of these lessons briefly and explain their impact on my daily life.
1. The economic aspect- Being disabled, I have two options on how I can receive my personal care. One is through a personal care agency, the other depends on the person to hire and fire their own assistants. Both offer the same service, now only difference is the money. You see, hiring personal assistants on your own only allows you to pay the person minimum wage. That is, family independent agency only gives you a certain amount of money and you have to pay them directly. The pay is based on a personal evaluation of your needs. However, if you go through a agency, the wage is a little higher. Not only that, but agencies usually provide background checks for the people they send over. In my case, I am very lucky because I get to determine what they will do for me and whether I end up hiring them.
2. Watching out for the "motherly instinct" in personal assistants- This doesn't happen very often, but it's something to watch out for. Sometimes personal assistants see the disabled community as someone who can't think for themselves or simply think they know better!! This can be a very sticky situation. While it may be true that they are doing what they think is best for you, you have to remind them that you are an adult and their employer.
3. Independence versus dependence- Even though living on your own seems like it would bring a lot more independence, that is not all true. It depends on your disability and how much help you need on a daily basis