Tuesday, March 19, 2019

Inside the Story: Paralyzed barrel racer's story to become Netflix origi...



Welcome Back Readers~

I ended last night by watching "Walk, Ride, Rodeo," on Netflix. This film chronicles the life of Amberley Snyder, a barrel rider paralyzed in a car accident, Refusing to give up on her love for the pastime, Snyder fights to regain her upper strength and independence. Along the way, the family came up with different techniques of securing her to this saddle with a seatbelt and leg straps. This film kind of reminded me of "The Brooke Ellison Story" and "The Soul Surfer". In real life, Snyder is now a professional barrel racer as well as a motivational speaker.

For more information about Amberley's story, please go to:

http://www.amberleysnyder.org/my-story/

Thursday, March 14, 2019

Personal Update: Flu Adventures

Dear Readers~

Let me begin this post by saying I'm sorry for the long radio silence on my end, but that could not be helped. The flu virus took down our entire household and we were down for the count. This doesn't mean it was a "fun adventure" as my title entry says, but that just happened to be the first words that came to mind while writing this blog.

The first one down was me. It all started with a nagging cough and a runny nose. At first, we thought it was a simple cold and proceeded as such. I will spare you the nasty details that urged my family and me to take me to urgent care the next day- only to learn I indeed had the flu and a 101° temperature to prove it!

My mom and dad stayed vigil during the worst of it. That being said, it was inevitable that one of them would get sick next. Of course, isn't that the type of sacrifice any parent would give for their child?

Dad was down for the count next.  This made things even more difficult since my mom was headed to babysit my nieces while my brother and sister-in-law went off to celebrate their anniversary. Despite his illness, dad did his best to take care of me Since I was still coughing constantly (unable to use my voice recognition), I spent most of my time playing games on my phone, reading audiobooks and binge-watching shows on Netflix.

I will say the one bright spot in all of this was that I found Irene Hannon's Hope Harbor books. If I hadn't been coughing, I would've spent most of my time working on my computer and my blog (not that that's a bad thing) but I had to find other ways to entertain myself not using my voice. These books help me relax since they were set on the beach and had very inspirational themes. Going along with the beach theme, I also watched a Netflix series called Bondi Rescue. This show featured ocean rescues that took place on Australia's most popular beach spot.

Meanwhile, mom was getting sick as well. She was doing her best to take care of the girls and nurse herself back to health. At one point, we had to come down and help her. She actually ended up with pneumonia!

That's the long short of it-. How the flu ravaged our family. I still have a little cough nagging me, but that's about it. I hope all my readers are doing okay. If not, I know what you're going through this flu season has been rough.

Debbie

Wednesday, February 6, 2019

getting to know Debbie part 2







Welcome back Readers;



In my last blog, I opened myself up to questions from my readers; unfortunately, the response was underwhelming so I had to resort to questions I've been asked in the past regarding my disability. I apologize in advance for the lackluster of this video as I was feeling a little under the weather that day. That being said, I decided to share it again here. If anyone has any new questions for me, please feel free to email me at the new email I've added to this blog and I will be happy to respond to you.


I do have a new video that I plan on posting a bit closer to Valentine's Day about the true meaning of love. This is for all the single ladies out there struggling to find their purpose in life and waiting for "the one" to enter their life so they can finally celebrate the day. In this waiting period, so many single ladies are missing the moments in between where they have the freedom to touch other people's lives in ways they can't imagine. So many people need love in this world; so many people need companionship.

Too often we forget about them and focus on ourselves. We shouldn't

Tuesday, January 22, 2019

getting to know Debbie video




Dear readers,

If you've been with me long enough, you know that I recently started a YouTube channel. Now you are able to put a face to my writing. Anyway, in the spirit of getting to know my readers and audience more, I posted a video asking for questions- about me, my disability, etc. This goes for my blog audience as well. Please feel free to ask me anything. I'm pretty much an open book. Hopefully, I will see some of you on YouTube. Leave me a note saying you read my blog if you do. I'm not just writing this for myself, I'm hoping to pass on the knowledge I've learned having a disability to others.

God bless,
Debbie

Tuesday, January 15, 2019

You & Me Trailer | 2018


Welcome Back Readers~

Almost 18 years after the premier of Listen To Your Heart, Freestyle Digital Media and Force Studios have joined forces to create this delightful comedy about a recently blind man and deaf woman coming together through adversity to find their own happily ever after. Starring Hillary Baack and Paul Guyet, this movie strikes that delicate balance between fighting against the stereotypes that society has when it comes to dealing with those who have disabilities and remaining humorous at the same time. Although it primarily deals with the stereotypes of those who are deaf, i.e. hearing impaired as well as those who are blind I couldn't help but relate.

Too often people look at me in a wheelchair  and assume I can't do anything on my own; as a result, they tend to treat me like a child rather than the 38-year-old young woman that I am and think I need 24 hour supervision.Why do I think is people's gut reaction? First, I think it's because I'm someone's first introduction to a person with a disability. That being said, they rely on the lessons they've grown up with, and watching those around them growing up; then there is the negative connotation that having a disability is a life or death sentence. While it's true that adjusting to a disability can take some time, it doesn't have to be a game changer. People with disabilities can live healthy and productive lives

While I do agree with the basic premise of the film, it could have done without the course language and sexual content. I think it could have had the same impact without it, but that's just my opinion.

For more information about this movie, please go to:

http://www.forcestudios.com/youme/

https://www.facebook.com/youandmemovie/



Thursday, January 10, 2019

Consumer Chaos: My Experience with Consumer- Directed Care So Far:

Dear Readers~

Happy New Year to my readers both new and old. As I'm writing this, I can hardly believe it's 2019. Where did the last year go? Although I have been really busy with my YouTube channel and getting consumer-directed care all squared away, my blog has kind of taken a backseat. In all honesty, I had no idea what I was getting into when I decided to embark on this new adventure of directing my own care.

True, I've had my share of ups and downs with agency-directed care- including those who could not understand English enough to take my direction and almost burnt the house down or those who just had their problems getting paid by the agency on a timely basis and therefore quit on me several times a month. You name it I've probably dealt with it. Still, agencies had their pick of personal assistance already vetted and could send them to me within a couple of weeks.

Now, I'm stuck doing the entire process on my own. Granted, I do have a consumer facilitator offering me suggestions on where to put my job openings out there, and he is great. One of the places to locate caregivers is mysupport.com. This site basically allows consumers to search for personal care assistants based on their needs and hours. But if I'm being honest it sometimes feels like I'm putting myself out there on a dating site; if it doesn't have enough bells and whistles on it, it doesn't get noticed. In the meantime, my dad and mom are the main caregivers and my dad has even gone so far as to be hired by me through a website so that I don't lose my hours through Medicaid. 

The problem is that the hiring process is so long and drawn out; it's difficult to have to mail papers back and forth to make sure my dad is vetted. I mean, he's my dad. I know him and trust him with my life!

I have even gone as far as putting my job openings on out-of-the-box websites such as care.com. The difficulty with these websites is that most people want more money for their time and it is not covered. I mean I don't blame them, taking care of a person with special needs is hard work and takes dedication. But paying out of pocket is difficult and not a good long-term solution.

Still, that's what I'm doing at the moment paying out-of-pocket for someone to come twice a week during the day. My parents need a break.

I pray as I continue along this journey that the right person comes along- someone who cares about people and who loves their job. I know God will put the right person in my life at the right time. In the meantime I remain patient, knowing that everyone who comes in contact with me does so for a reason- even if they don't know it.

I would appreciate all the prayers possible and positive vibes as I don't know what the new year will bring. But God does... And that's enough!

Debbie

PS. Feel free to share your personal care journey in the comments below. I would appreciate knowing I'm not alone in the process!
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