It's hard to believe it's been four months since my last post. During that time, I've had Botox for a second time, continued with therapy, and enjoyed the rest of my summer.The therapy went well; I succeeded in getting enough extension in my left arm to get a Seabo Stretch device. This allows me to keep my arm stretched for extended periods of time without the assistance of someone. Right now, I am up to three hours a day in the splint. The only downside being, I am limited on how much I can do while I'm in the device. Ultimately, the goal is to start wearing the device at night.
Sadly, this treatment for CP (like many others) is only temporary. It has to be repeated every three to six months in order to maintain elasticity and stretch of the muscles.. That leaves me with the age old question: What's Next? At this point, I really don't know. I just know I don't plan on making Botox a routine event on my schedule. I had hoped that this treatment would be maintainable over time but as my doctor puts it my flexibility is like that of a rubber band- the muscles can be stretched, but the reality is they will always return to its bent position (unless they are constantly stretched). Otherwise, surgery may be my only option.
Still, I am doing my best to live a life without limits. Just like the young adult cast of the series "Born This Way". Season 2 of the series airs Wednesdays at 10 PM