Friday, October 24, 2008

Cerebral Palsy blog

Guys,

It's that time once again. Friday, the beginning of a weekend. I have a in-between feeling about this weekend because I'm headed out of town. Family business. I am looking forward to spending some time with my mom and her family. As a result, I will not be back until Wednesday. That being said, I intend to have through Wednesday done before I leave.

The first installment starting today. I found this website helpful. It deals with my disability (cerebral palsy) and the foundation that provides support to parents.

Feel free to take a look..
http://ucpeople.blogspot.com/

13 comments:

Anonymous said...

Thanks for mentioning our blog on yours. I have been following yours for some time now. I really appreciate your unrelenting positive outlook you have for yourself and your writing.

We are going to have something in the near future, in the next couple of months called My Child Without Limits. It isn't active yet, but this will be our early intervention Web site for children 0-5 years old and parent to exchange resources and find new information about different types of disabilities.

In fact we are beta testing the community portion of the Web site right now and if you are interested in helping out by lending your expertise, we'd love to have you.

E-mail Lara Terrell our Information and Referral specialist at lterrell@ucp.org.

Again, thanks for the mention. We really appreciate it.

Snowdrop said...

Hi Debbie.

Just dropped onto your blog and it is certainly one I shall be following. I was the parent of a little boy with profound CP and he taught me a great deal.

More power to you. Take a look at my blog on http://snowdrop-snowdropblog.blogspot.com/

Andy

Amy said...

Hi Debbie,

Best of luck to you out of college!

My girl is now 4 years old, and she has CP too. I love reading successful stories about those with CP. Thank you for sharing!

If you want to check out Elena, here is her story:
www.elenadoodle.blogspot.com

Thank you!
Amy

Unknown said...

Hi Debbie,
I am proud of you.Thanks for sharing information about disability and thanks for maintaining this useful blog. You may visit
http://www.OriginsofCerebralPalsy.com
to find some useful information on causes or orgins of cerbral palsy: the etilogy of CP - aetiology, causal pathways.

Anonymous said...

hi I have CP and have been following your blog for a while just want to say hello and invite you to visit my blog as well!

Unknown said...

You can find more information on Cerebral palsy in:
http://www.geneticsofpregnancy.com/Encyclopedia/Cerebral_palsy.aspx?pid=62
This site contains information On Pregnancy Diseases And Genetic Testing.

Unknown said...

You have a nice blog. I am looking forward to learning more about you.
Sam

Unknown said...

There is much more information on Cerebral palsy in:
http://www.geneticsofpregnancy.com/Encyclopedia/Cerebral_palsy.aspx?pid=62&cid=119
This site contains information On Pregnancy Diseases And Genetic Testing.

Allison Bonar said...

I'm so glad I found your blog. My son was diagnosed with CP 4 months ago and it is wonderful to hear from someone who is so strong.

Molly Corbally said...

Hi Debbie,

My name is Molly Corbally. I am the production coordinator for The Cohesion Project, a film that shows the diversity of those being challenged by Cerebral Palsy and the daily victories of this group. We have representation from such varied places as Arizona, Indiana, Connecticut, Pennsylvania, Iowa and Virginia. CP does not discriminate and we plan to show a cross-section of awesomeness from around our country. Through donations, we've been able to film the stories of people with CP across the country. We hope to use our film not only to spread the word about these remarkable people that we've encountered but also coordinate organizations around the country and use our film to raise money for foundations and individuals that are doing things the right way. Right now we're in the post-production stage and require more funds in order to complete this film and get it out to the world.

I was wondering if you would be interested in getting involved with this project, whether it be through a donation, posting a link/information about our project on your blog, http://www.kickstarter.com/projects/thecohesionproject/the-cohesion-project-post-production, or posting our facebook link, https://www.facebook.com/thecohesionproject.

I'd also like to share that we are currently seeking anyone facing the challenges of Cerebral Palsy to be a part of our film. Disabilities show no hint of discrimination and we’d like to show a diverse cross-section of mothers, sons, professionals, neighbors, etc. with CP. To enhance the strong stories of our three main subjects, we’d like to add various “video snapshots” of people with different experiences as they meet the challenges of living with a disability. Our Faces will be strategically placed in our story to show our audience the diverse lives people with CP live every day. If you or anyone you know would be interested in being one of the Faces of The Cohesion Project please feel free to contact me at this email address or thecohesionproject@gmail.com. Thank you for your time.

Best Regards,

Molly Corbally
Production Coordinator
The Cohesion Project

Joshua said...

Very interesting post. I have a great ebook that is 100% geared toward individuals living with cerebral palsy and improving their independence through the use of cerebral palsy exercises. It is called training with cerebral palsy and I know it would be beneficial to anyone you know with Cerebral Palsy
-Joshua K Neufeld
Author of Training with Cerebral Palsy

Freedom Concepts said...

If you never thought you'd ever see your child ride a bike, Freedom Concepts will change that. Please check out our website for mobility devices that have been proven to make a huge improvement in your kiddos muscle development and strength. www.freedomconcepts.com

Anonymous said...

Following a complicated birth, baby Dylan faced multiple health challenges, including brain injury and blindness. Within a year his parents were given even more devastating news: Dylan had Cerebral Palsy. Fortunately Dylan’s parents had banked stem cells from his cord blood and those stem cells were used in treatments that contributed to his ability to learn to crawl, speak, and gain some vision. After multiple treatments from his own cord blood stem cells, his family is hopeful that doctors will be able to find additional stem cells from a donor so that he can progress further with more treatments.

http://cordadvantage.com

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