Merry Christmas! God bless us, everyone!

Merry Christmas Everyone,

Okay, I was fooling myself if I thought I was going to get all of the posts up for Christmas. I still have a lot to do, but I don't think I'll get it done by tomorrow! (December 25) For that reason, I want to wish you a wonderful day with you family and friends. I will be spending the day with my family. But before I go, I wanted to share this website with you. It explores the miracles that can happen over Christmas if you just believe.

http://oregonfaithreport.com/2009/12/real-life-christmas-miracles-bring-inspiration/

Wishing you a blessed Christmas, Debbie

Encouragement: Music Changes lives

Hey Guys~

So I've decided to finish this week and start fresh in the new year. In reality, I know I've not kept this up to date and I'm over a month behind. But I figured you'd rather see something than nothingSo here we go.

In previous posts, I've discussed the power of music in people's lives. Recently, I was "introduced" to someone who feels the same way I do . Her name is Erin Breedlove. Like me, she has cerebral palsy but is breaking boundaries despite her disability. Now, her CP is much less severe than mine. Still, she is doing great things for her cause. She believes that music has the power to change and influence people beyond what they thought they were capable of doing. This is also known as music therapy. Read more of her story at:
Http://www.empowerpeoplechangelives.com/

The importance of communication

Happy Monday..

It's hard to believe it's just a week or so before Christmas. (Okay, so I realize it's really after the fact). I help everybody has taken advantage of the time with family and friends. I certainly have had a interesting Christmas this year. I am blessed to be what I am, with the abilities I have. Not everyone is so lucky though. But thanks to a new communication device, a boy is now able to communicate through the use of assistive technology. I kind of related to this story because of the way voice recognition has opened new doors for me over the years..

http://www.edweek.org/login.html?source=http://www.edweek.org/ew/articles/2010/01/02/321734kspnsecondvoice_ap.html&destination=http://www.edweek.org/ew/articles/2010/01/02/321734kspnsecondvoice_ap.html&levelId=1000

Travel Tips

Welcome back,

I know what you're thinking.. I've been going through a lot lately and I don't feel as if I'm in the best place right down to continue this blog. That being said, I'm taking a break from providing any personal opinions or views for a while. I can only hope that God will help me through this difficult time. Maybe I'm having my midlife crisis early.. who knows?

Anyway, in light of the holiday season, I came across this website and on it would be helpful.

http://www.electricwheelchairnews.com/blog/wheelchair-electric/14-ways-to-make-traveling-with-a-disability-easier

By now, this is old news... But better late than never

Hey,
I hope everybody enjoyed their Christmas, making memories with family and friends. I certainly did. This time of the season reminds me of what is important-love and family values. That's the only thing that truly last forever.

But now it is time to get back to business. Over the Christmas break, I came across this news article. It's regarding the real-life savant portrayed in the movie "Rain Man"; he recently passed away.
http://www.disabilityscoop.com/2009/12/22/rain-man-dies/6545/

For those of you who don't know, "Rain Man" was a popular movie in the 1980s. It started Dustin Hoffman and Tom Cruise. Here is a brief synopsis of the story provided by the Internet movie Database: "Rain Man (1988) the story of a young man who regains his humanity through the unexpected love of a brother he never knew he had--until now. Charlie Babbitts father passes away, leaving him only the car that caused their estrangement, and some prized rose bushes. Using his cunning, Charlie traces the remainder of the inheritance, a trust fund, to an institution for the mentally challenged--Wallbrook. There, Charlie discovers the existence of a brother that he'd never known. Charlie abducts Raymond, an autistic savant, from the institute in the hopes of ransoming him for at least half of the $3,000,000 trust fund. Raymond's fear of flying forces a cross-country road trip, during which the two brothers reconnect. Charlie learns that he'd actually known his brother when he was young, mispronouncing his name as "rain man," but Raymond had burned young Charlie badly in hot water and, for this reason, was forced to live at Wallbrook--all but forgotten. By the time the two reach Los Angeles, Charlie's love for his brother has rekindled the humanity within himself. He's left mystified by the enigma that is his brother and grows from the experience, even turning down Dr. Bruners offer to walk away for $250,000. "

This movie with my first experience in terms of understanding disabilities other than my own. I was eight years old and fascinated with how much a disability can impact relationships.

Faith, Hope, and Love: a Wonderful Testimony

Welcome back~

In preparing for this season, I came across this wonderful blog post. It illustrates the power and influence that our loved ones have in our lives even though they may not be with us. This post also reminded me of my grandparents. May they rest in peace. I know I will see them again someday. Anyway, please feel free to take a look:
Http://continuousdelights.blogspot.com/2009/12/12-pearls-of-christmas-faith-hope-love.html

It's Okay to Ask for Help

Okay,

Christmas is widely recognized as "The Season of Giving", a time where people feel the urge to give back to the world around them. Because after all, we are connected and trying to make it despite our circumstances. All too often, we forget this feeling shouldn't be limited to this season; but it should be carrying out throughout the year. That's the only way we are going to survive this-together.

In the spirit of the season, I came across this blog. Not only does it feature someone with a different disability than my own-multiple sclerosis-but it proves something.. it's okay to ask for help!

http://msandfaith.blogspot.com/2009/12/hope-brought-back-beth.html

Christmas is coming..

Hey Guys~

December has almost come and gone; I'm just now getting to the posts for this month. How bad is that? Although, I'm kind of glad that I haven't been distracted by the activities of the year. After all, Jesus is the reason for the season and that should be my focus right now. I have been blessed with a lot of unique opportunities, such as being a bridesmaid at a friend's wedding and having several friends visit me.

In an effort to maintain this Christ-like focus, I came across this website that I thought I would share with my readers. I hope you enjoy..

http://www.lorilaws.com/2009/12/i-lift-up-my-hands.html

One of my newest readers

Hello everyone~

With Christmas on the way, I have kind of lost my focus in doing this blog. Hence, being three weeks behind is the result. But as I have stated before in previous posts, those weeks were not lost. I was able to get a lot of writing done as well as have a friend visit me. I just wanted to let you know I haven't forgotten about you and am grateful for all of my readers.

In today's post, I would like to feature one of my newest readers. She seems to be a lot like me in terms of wanting to keep the public out today on on the latest news regarding disability. Her readership seems to be growing fast. I hope you take the time to visit her website at:

http://lifeofthedifferentlyabled.wordpress.com/

Another Website regarding the Things to Think about When Choosing a College

Hey Guys,

As my readers may have noticed, I like to reminisce a lot about my experiences in college. These experienced help shaped into the person I am today. That's why I believe it's so important for people with disabilities have the same type of experience. That being said, here's another article featuring things to think about when choosing a college.

http://collegeadventures.net/blog/2009/11/22/college-students-learning-differences/

Encouragement:: The Little Girl Who Dared to Wish article

Welcome Back,

Okay, so I know it's been a while since I last posted. Since Thanksgiving, I have decided to focus my efforts on finishing my book. It's gone pretty well considering the circumstances. I am now almost halfway through writing Chapter 7. Pretty good, considering I had a friend visiting from Michigan. It was fun, but now it's time to get back to business. I know I promised I would finish the book review of I A Potential, but that is going to have to wait until I am finally caught up on my posts or finish chapter 10-whichever comes first! But I have a lot to do first-three weeks of writing..

In the meantime, I came across an article that I thought my readers might enjoy.
http://tradeinniftyonly.blogspot.com/2009/11/little-girl-who-dared-to-wish.html

New blog guidelines.

Dear readers,

I know it's been a while since I've posted a blog entry. Things have been very busy around here lately. Since Thanksgiving, I have been busy working on my book as well as enjoying a month visit from a friend. It's certainly been interesting; I've also made great strides in terms of my book. Recently, I just finished chapter 7, almost reaching the halfway point. It's exciting to think that by the end of this month a real Christian editor will have looked at the first five chapters of my book.

That being said, I have been kind of focused on that one aspect of my life right now. In the process, I have lost track of this blog. So, you can imagine my surprise when I saw some spam or otherwise inappropriate comments on my blog. As a result, I have employed comment moderation for my posts from now on. This should on a lot of it. I apologize to those who find it difficult to use word verification because of their disability.

Thanks,

Debbie

Dance Helps Man to Walk Again

Welcome Back~

I thought I would pass this article on to my fellow readers before Thanksgiving. I know in reality this post in a week late, but I'm just now catching up on things. It has been a busy one on my end; last weekend I stood up in one of my best friend's wedding. It's hard to believe she's a married woman now. Upon our return, we stopped through Pittsburgh to visit some college friends of mine.

Anyway, here's the article. It tells a remarkable of how dance helps a disabled man to walk again
http://www.aolhealth.com/condition-center/cerebral-palsy/overcoming-cerebral-palsy?icid=mainaimdl3link4http%3A%2F%2Fwww.aolhealth.com%2Fcondition-center%2Fcerebral-palsy%2Fovercoming-cerebral-palsy

Topics of debate

Dear Readers,

I came across this article while researching for different topics of interest to discuss on this blog, the subject is kind of misleading when you think about it. But if you read further down, the following posts make some startling revelations of topics of debate. One of which being pre-determining genetics of the unborn to eliminate the possibility of a disability. Personally, I don't believe it's right to do so. Doing so plays God, not only eliminating an opportunity to trust him, but puts our own fate in human hands.
http://disability-possibility.blogspot.com/2009/11/it-all-comes-down-to-people.html

Encouragement: Disability on Glee (NBC)

Hey Guys,

Over the last couple of weeks, I have become a fan of Glee on NBC. Not only because they have a great variety of music on the show, but because they show the universal meaning of acceptance. This acceptance is not based on values of cliques often found in high school, but formed because of one common interest-their love of music. It takes teens from all walks of life, races and brings them together. Some people, though, question the show's premise; they say it waters down the true "impact" a disability has by making fun of it.

I've watched this show and I still don't know what to say. I'm on the fence. But what do you think?

http://theboozetube.wordpress.com/2009/11/27/the-dumbing-down-of-disability-on-glee/

Being Thankful For Time

Welcome back,

With Thanksgiving coming up, I came across this article and was reminded how grateful I should be to have not missed 23 years of my life. Reading this article reminded me of how miraculous life can really be and to never take anything for granted.

http://news.yahoo.com/s/ap/20091124/ap_on_re_eu/eu_belgium_coma_recovery

Beauty Will Rise

Okay,

So I know it's been a while since I last updated this blog. I have been busy dealing with computer problems, bridesmaid responsibilities and gearing up for Thanksgiving. But I'm back down and planning on updating as much as I can before taking a break. For today's blog, I came across this article featuring Steven Curtis Chapman talking about his new album, Beauty Will Rise. This album comes just about a year after the tragic death of his five -year-old daughter, Maria

http://www.popeater.com/2009/11/13/steven-curtis-chapman-daughter-new-album/?icid=mainaimdl2link3http%3A%2F%2Fwww.popeater.com%2F2009%2F11%2F13%2Fsteven-curtis-chapman-daughter-new-album%2F

Encouragement: Military Families Fighting for More Than Just Peace

Welcome back,

Did you know one out of 88 military kids have autism? That's an alarming statistic, but surprisingly accurate. Researchers say that these numbers "paint a more realistic picture" about the large number of autistic children of military families . Where does that leave our soldiers? Worrying about their kids as they fight to protect Americans, waging a war on terrorism. As you know, autism is not an easy disability to live with; it requires several hours a day of applied behavioral analysis in order to teach them to function in the real world.

That's not an easy task, considering the military currently covers only a part of the therapy costs. According to program, most military families receive only 10 to 14 hours of the 25 needed each week for the therapy. The rest may have to be paid out of pocket by the family; Congress is considering providing more help. We need to pray for these families.

-- Citation for TV Program: "Battle Against Autism " News segment Tisha Thompson reporting, Fox channel 5 WTTG Washington DC, News at 10 pm, November 9, 2009

Possible genetic link to autism?

Hey Guys,

I came across this article, claiming there may be a link between a specific gene in twins leading to autism. What do you think?

http://www.disabilityscoop.com/2009/10/22/twin-study/5884/

Another Interesting Article Showing Startling Trends regarding Employers Hiring the Disabled

Welcome Back,

Okay, so I came across this article regarding disability employment in Canada. It says employers are hesitant to hire people with disabilities. I wonder if this is a developing trend..

http://www.disabilityscoop.com/2009/11/05/employer-attitudes-ca/6059/

Encouragement: A Number of New Sources

Okay,

So it seems I am not holding up realistic expectations for this blog lately. My computer has been completely reliable and can stall out at any moment. With that and Thanksgiving coming up, I have decided to postpone my next installment of the book review for Patrick Henry 's I Am Potential. I hope that doesn't cause any inconvenience for anyone. But I am going to be busy during next few weeks, participating in a friend's wedding as a bridesmaid and other activities.

For the time being, I came across this cerebral palsy blog that provides some other helpful links

http://www.livingwithcerebralpalsy.com/blogger/2009/11/heartbreaking-case-of-baby-rb.html

Interview with Western Illinois University Student

Welcome Back~

Last week, I was contacted by a Western Illinois Unversity student in Special Education. She was inquiring about some information in regards to my disability to help her in a class project. I was happy to oblige, figuring it would lead to a better understanding of CP and disabilities in general. I have decided to include my answers to her questions here in the hopes of continuing to build such an understanding between the disabled community and the able-bodied community as well. Feel free to e-mail me if you have any further questions.

Answers to Questions about my Disability.

I am happy to answer the questions in hopes they will help others that are preparing to become special education teachers, or those with disabilities.

1. What type of CP do you have? I am diagnosed with “spastic quadriparetic cerebral palsy” which means I have CP that caused me to be quadriplegic – I cannot use my hands or legs.
2. How does your type affect your body and the way you live? It makes my muscles tight and difficult for me to do things by myself. As a result, I depend on personal assistants to dress me, feed me, etc. but I am blessed with a good mind. I had a very premature birth and the cause of my CP is probably some loss of oxygen to my brain, which caused a hemorrhage and damaged parts of my brain. I have met many people in my condition where their mental capacity has been affected because of the lack of oxygen at birth.
   
3. Do you take any medication or attend any therapy to help your condition? I have a continuous small dose of the medication “baclofen” being pumped into my spine to help relax my tense muscles. The medication is provided by an intrathecal baclofen pump – a small pump implanted in my body that uses a small computer to control the rate of baclofen being pumped through a catheter that goes into my spinal cord. Every month or so I have to go to the doctor for a pump refill, and every few years I go in for surgery to replace the pump and batteries.
   
4. How did you parents react when they found out you have CP? They told me they were scared and unsure of what my future would bring. But they trusted God. They wanted to learn all they could and get the best therapy. It was difficult but God gave them strength and hope.
   
5. When you were in school, were there any accommodations that were made in relations to your schoolwork? In terms of my schoolwork, my IEP (individual education plan) ensured that I would have the extra time needed to complete tests, and homework. This was important because I depended on other people to write down my answers Word for Word. That is, until in about 1995 I received Dragon Dictate (one of the first voice recognition software for computers) It has now turned into Dragon NaturallySpeaking and allows the computer to write when I say. This is how I got through high school and college.
   
6. Are a student’s learning abilities affected differently according to the type of CP they have? Yes, I don't know how I exactly. But I kind of covered it in question number two; in my case, the Lord gave me the ability to learn and a good mind enabling me to graduate from high school, attend a Community College and earn an Associate’s Degree, and then go on to Concordia University and earn a BA Degree.
   
7. What would you like to see with the future research on CP? It would be wonderful if researchers could find ways to heal and restore damaged brain cells!
   Do you have any personal goals when it comes to CP? I have the same goals as other people: to find love, get married, and have kids.
   
8. What kinds of difficulties to you face on a day-to-day basis? Everything is difficult for me, if I allow myself to look at it that way. I want to be independent, but I have to depend on other people for so much. But such is life. I think the way people react to disabilities is most frustrating. I have to work so hard to overcome the stereotypes that people have of disabled people.
   
9. Were you ever treated differently because of CP? Any specific stories? I think that when people see me, they automatically see the wheelchair and think the worst. They are often afraid to talk to me or they think I am younger than I am because I am petite and sitting in my wheelchair. I will illustrate by a story. When I was in college, we would go to a restaurant and the hostess would give me a children’s’ menu- when I was over 20 years old! Then, the waitress would ask my father what I wanted to eat – rather than ask me. So my dad would look at me and say, “Debbie, what are you going to order?”
   
10. What activities or hobbies do you like? I like to read and write, because, of course, that is one of the limited things I can do. My blog, “Rollin into the Future” is an important hobby – more of a mission – because it allows me to provide encouragement and information to other people with disabilities. For now, it is the daily mission that God has given to me.
11. Did CP ever get in the way of these hobbies, if so how did you overcome it? I buy a lot of books – but I cannot turn the pages in the books. So my dad cuts the binding off with his band saw and feeds the pages through a scanner to convert them to computer format so I can easily read them on my computer – so I turn the pages with my voice!
    

Weakness

Okay,

So I've been thinking a lot about weaknesses this week. Not only because my family is going through a lot right now, but because I'm questioning my purpose. Are things ever going to settle down in Virginia? Am I ever going to find a place where I fit in here? I mean, my parents are fitting in great into their role as grandparents. But me? I struggle as a aunt, trying to find different ways to connect with the girls despite my disability. It really doesn't help that I have little to no friends down here. If I did, it wouldn't matter to me how much time we spent with the kids. I could do my own thing if I wanted. They are grandparents, they deserve to act like it! But sometimes, I can't help but feel left out. Let's face it, that's part of the reason why we moved out here, so they could be grandparents.

Anyway, in many respects, I feel weak. I wonder when my time will come to be settled; with a job, an apartment, a love, etc. Not to sound ungrateful, because I'm not. But it's high time my life get started again. But then I remember an important verse. 2 Corinthians 12:9

But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me"

Encouragement: Disability Pride And Power

Hey Guys,

Today's Encouragement post shows how having an disability can give people a second chance at life. This webpage also highlights how far we have come as a society, learning to value an individual based on what they can do rather than what they can't.

Take a look..

Http://wheeliecatholic.blogspot.com/2009/09/disability-pride-and-power.html

Until next time,
Debbie

In the news: "Mermaid" Girl dies At Age 10.

Welcome Back~

As many of you may know, Shiloh Pepin recently died at the tender age of 10 years old. Known as "The Mermaid Girl", she was born with a rare condition that fused her legs together. To read more about her story, go here:
http://www.centredaily.com/lifestyle/story/1586008.html

The campaign for disability and employment

Hello again,

During this very difficult time, it is hard for anyone INCLUDING the disabled to find a job. In this new public service announcement, this simple idea takes center stage. It highlights a variety of a people with disabilities, sharing what they can do to help support businesses in a variety of different ways.

The commercial is a real eye-opener.

Please take a look

http://wheeliecatholic.blogspot.com/2009/10/campaign-for-disability-employment.html

Encouragement: View of A Caregiver.

So,

I realize that Wednesday's "encouragement" posts have changed in the last couple of weeks. In all honesty, I have completely forgotten about finishing my review of Patrick Henry's book I am Potential. It's so easy for me to get distracted these days; I have a lot going on in my life. You wouldn't believe that because I spend most of my time on my computer, but I do. It doesn't help the situation that my voice recognition software has become unreliable.. at any time it could choose to freeze up on me, along with a host of other computer problems.

Still, I try to remain optimistic. I am hoping to get back to my Patrick Henry book review next week. If I don't, please readers, send a e-mail to remind me. I don't do this blog for myself, I do it for you and I don't know what type of information you want or need regarding disabilities unless you tell me. I'm not perfect, no one is

Anyway, I came across this blog while sorting through some e-mail. It provides an interesting perspective, that I wouldn't have otherwise thought of. The perspective of a caregiver. This blog features a caregiver of a person with Asperger's (sp?) Syndrome.

http://www.caregiver.jlchrls.com/

I'm sorry to say but I often forget to thank the people in my life that make my independent living possible

Disability at work

Hey Guys,
Even though I don't have a job, I thought this was hilarious. These are how you know you're disabled to work

http://cripwheels.blogspot.com/2009/10/disability-at-work.html

A Guy's Perspective

Dear Readers,

I came across this website as part of my Google Alerts. Honestly, I was quite surprised; not only because this was the first guy's perspective on having a disability. Sure, I've had stories of young boys growing up, but never teenagers. I will be reading this blog for a while.

http://wheelchairjunkie.wordpress.com/2009/10/16/cerebral-palsy-as-steroids/

Encouragement: Dog Helps Paralyzed Boy Surf

So,

I came across this one article that shows another positive of service dogs. Kind of entertaining, don't you think?

http://www.gnn.com/article/patrick-ivison-and-dog-ricochet-surf-to/720774?icid=mainaimdl5link3http%3A%2F%2Fwww.gnn.com%2Farticle%2Fpatrick-ivison-and-dog-ricochet-surf-to%2F720774

Another ministry abroad

Welcome Back,

As I'm writing this, I continue to be behind on posts. It's Saturday and I'm just now starting on the week. I know I haven't written much lately as I explained on previous blogs; my health issues have made it difficult for me to have enough energy and patience to write. In writing, I feel like I have a certain amount of responsibility to you my readers to provide the most positive, up-to-date disability news and tips.

I don't feel as if I've been living up to that lately in terms of my personal life. A lot has been going on with me, causing me to wonder once again that the purpose of my life as well as this blog. I know everybody is prone to doubts; they can provide a defining moment in a person's life to which direction they should go. A sort of crossroads. If I'm being honest, I find myself there once again- trying to remember who I am and who God is. Don't get me wrong, I still believe in God, but our relationship has changed. I'm to blame for that; I know I'm the one that moved. But now I'm trying to change that, I want to get to know him better than I do now.

For the past couple of months since we moved, I've noticed a difference in my perspective. Not only am I a lonely in a physical sense, but in a spiritual sense as well . The yearning and fire in my life has kind of gone out. I'm strong enough to know that something is missing in my life, but I don't know what to .

That's some of what has been going on with me lately. Despite everything, God is doing great things in the lives of my friends and family. For instance, I talked to my friend Christel in the Panama; they are doing well as part of the Lutheran ministry there . Her husband recently traveled to Peru to check on the country's status.

Many of you may remember that this month is Breast Cancer Awareness Month . Tomorrow, (10/18), my mom will be participating in the Annual Walk in Ohio. When she gets back, I will update you with how much money was raised. I think my grandmother would be pleased knowing that her daughter is doing this.

Anyway, it's interesting to know that strides that are being made in a effort to share the news of Jesus Christ. A while back, I came across this website that shows how the Ministry is growing across the country

Take a look..

Http://leslieburch.blogspot.com/

Not feeling well

Hey Guys,

I realize this is the first time in weeks I've written on this blog ; I apologize. I just really haven't felt up to it. I've had persistent stomach problems for a while now and can't seem to get a handle on it. I've been to several doctors and they say my condition is quite normal for someone with a disability. I've tried my best to get more water and fiber into my diet because that is a contributing factor. But in the end, I always come back to feeling bad again.

These digestive problems are to be expected though; it's a downside to taking baclofen, I guess. My lack of exercise may have something do with it too. But come on, who has the time to measure out 15 grams of fiber and drink two bottles of water. According to the doctors, that's the normal amount a person should have to maintain good digestion. I'm no dietitian, but that's a lot of fruits and fiber bars.

That being said, I am not at my best. But I intend on catching up with some posts this weekend.

Encouragement: Resiliency

Hey Guys,

It's Wednesday, time for an "Encouragement Post". As you may have noticed, I talk a lot about resiliency on this blog. Resiliency is the ability to pick yourself up when you're down, to keep going despite the severity of life's circumstances and always believe in yourself no matter what.

I came across this website which provides another Outlook on resiliency
http://resiliencyfirst.com/2009/10/05/believing-in-your-resilience-will-set-you-apart/

The importance Of the Church

Welcome Back Everyone~

Since moving here, I have found it hard to connect with people outside my family. I realize this may have a lot to do with not being as familiar with the area as I'd like, but I really do feel like I'm missing something. Coming from a household with many different preferences, it has been difficult finding a church we can all agree on. However, I realize its importance in our lives. Not only because the church is supposed be a source of emotional support, but it's also food for the soul. I pray I never lose sight of the yearning in my spirit then tells me that things are supposed to be different than they are.

That being said, I thought this article was very interesting. It's about a church specifically devoted to parents of people with disabilities. The idea is cool, but I don't know how I feel about it. After all, the diverse perspectives sometimes help us out..
http://www.disabilityscoop.com/2009/09/14/church-2/4919/

Confusion

Welcome back,

As I write this, I realize I am another two weeks behind. I am sorry for this; it seems like I have too much on my plate right now. For the last two weeks, I have had a lot more time to myself for things such as my book writing etc. because my personal assistant was on vacation. I was able to finish chapter 4 of my book. So it seems to be coming along pretty smoothly. Although with all of that time, I found myself more distracted by Facebook.

My personal life has also been busy. My family has encountered some difficulties that have kept my mind unfocused and worried. Please keep us in your prayers

Anyway, I am back and going to try this again. For a while, my posts will just include links until I get back into the swing of things. As with previous posts, I have discussed the importance of representation in terms of disability in the media. While I find it necessary and inspirational, some people think it can be taken to the limit.

Take for example this blogger,

http://blog.sojo.net/2009/10/05/disability-as-entertainment-so-you-think-i-cant-dance/

Encouragement: My Reflections on "The Note"

Hey Everyone,

I am taking a break on my regular encouragement series featuring Patrick Henry to talk about a movie that has been close to my heart the last couple of months. I don't want my readers to get the wrong impression, this post is not meant for entertainment purposes; although some can obviously be found.

As I'm sure you've noticed, living every day to the fullest has become a common theme through my blog. Learning this is so important because it allows us to take each day at face value. Every day, we make vital choices that determine what road our life is going to take. Where are our priorities in life? How are the priorities going to affect our future as well as those of others? As humans, we often forget every day should be considered a gift from God- a second chance to reevaluate our lives.

This is the subject of one of my favorite movies on The Hallmark Channel. Based on the book by Angela Hunt, this movie stars Genie Francis and Ted McGinley. The premise of the story is a simple one. After a fatal crash of an airplane, a burnout journalist is given a unique gift when she finds a note left by one of the deceased passengers. Felt that she was given this note for a purpose, she goes on a unforgettable journey- hoping to reunite the note with its intended recipient. In the process, the note gives her a topic to write about for her column, "The Heart Healer ." Not only did she find the note touches all whom come in contact with it, but causes her to question the choices in her younger years, including an unforgivable secret she has buried.

I hope in the short synopsis then you can understand why I shared it with you. Of course, I love the movie because it has writing in it; but, it also serves as a constant reminder that life is a gift and it should not be wasted. Recognize your talents and use them to make a difference. But most of all, it's people that matter. People need to be reminded that there is such a thing as "Second Chances". Jesus Christ first showed us this idea by dying on the cross for us so that we might be able to spend Eternal Life with him in heaven!

In truth, I don't know what I would say if I only had a few more minutes left on this earth . I don't think anyone would. But as I get older, I realize there will come on down when I will leave this earth .. That's why it's so important that nothing is left unsaid.



If you love someone, tell them .

We need each other.. to listen, to understand, to care. That's the only way we are going to make it through this world. But we also need God.

For more information on the book, please go to:

http://www.amazon.com/Note-Women-Faith-Fiction/dp/B002B55XJU/ref=sr_1_3?ie=UTF8&s=books&qid=1254340618&sr=8-3

For more information on the Hallmark Hall Of Fame movie, please go
http://www.amazon.com/Note-Michael-Barbuto/dp/B001D7T6A4/ref=sr_1_1?ie=UTF8&s=dvd&qid=1254340618&sr=8-1

Personal Reflections:

Welcome Back Readers,

It's the beginning of another week and I continue to be amazed at how fast the time passes. There never seems to be enough time for everything ; something always remains unfinished everyday and I wonder if I will be able to finish tomorrow. But I guess that is something everyone struggles with. Priorities and how to manage one's time wisely so that at the end of the day, you will have no regrets.

Regrets. Everybody has them in one form or another . We wouldn't be human if we didn't. After all, no one is ever promised an easy life.. Despite the fact that this is how the Christian life is characterized, it's not true. In times of difficulty, the question of "Where is God?" is often asked. As hard as it is to believe, he's right there! Ready and willing to help you through any situation that arises if you will just allow him too. Notice that I said through and NOT around! The struggles of this life are meant to help build character and teach us lessons that we wouldn't have learned otherwise.

I 've been running this race as a Christian for a while now, and I still can't seem to wrap my mind around this lesson at times. At times, I find myself becoming bitter with my circumstance; this can block whatever blessings God may have for me that day. I often wonder if this is just a stage of life I'm going through or if it will fade with time and God's grace and mercy. I have been reading Joni Eareckson's new book, A Lifetime Of Wisdom: Embracing the Ways God Heals You and surprisingly she says anger is sometimes good when it points you to God. He would rather have someone who is open and honest with Him rather than a polite and etiquette- acceptable prayer. That's what makes it a relationship with God, instead of what people refer to as "religion".

This is a topic that has laid heavy on my heart for a while now. I apologize if it doesn't really make sense, I should have written about it earlier so that I could have gotten all my ideas down. But I tend to shy away from post of a personal nature because of the simple fact that potential employers could see my writing.

Stayed tuned for Wednesday as I highlight one of my favorite movies, "The Note" and how it relates to encouragement as well as this idea of second chances.

Thanks for reading,
Debbie

I don't usually feature celebrities on my blog, but I thought the opening quote and perspective was inspiring !

Hello Everyone,

One down, one to go and I will be all caught up. Let's see how long I can stay up to date and accurate this time.I plan on something a little personal for my next blog post, so be sure to stay tuned.

Anyway, I came across this website while attempting to clean out my e-mail inbox of all the Google alerts in regards to disability and cerebral palsy. The opening quote is what hit me first. It said: "A champion never looks at what he is going through, only what he is going to." This quote is by John Riccio, a actual athlete with CP.This is really worthwhile to look at :

http://www.paulsedillo.com/2009/08/a-champion-never-looks-at-what-he-is-going-through-only-what-he-is-going-to-john-riccio.html

Encouragement: From Yet Another Mother

Dear Readers,

I find myself behind yet again. As a result, I have decided to postpone the continuation of Patrick Henry until I get caught up (which shouldn't take me long because I intend on getting caught up today). That means you will have a lot of reading and exploring to do from my website.

In closer inspection, I have come to realize I don't have many perspectives other than my own on this website. I have added some mother's perspectives, such as the one from To the Max. But not much other than that. I am doing my best to broaden my horizons and provide a wide range of perspectives, not only for myself but for you. This will give my readers a diverse number of opinions and outlooks on various situations. That being said, I would like to introduce another blog you. This one is entitled: Living with Faith. It is written by a 31-year-old mother who has a child with CP.

Go Ahead and take a look. A word of warning though. When you load the webpage, she has music on it that is somewhat loud. You may want to turn down your speakers. Chuckle.

http://livingwithfaith04.blogspot.com/2009/09/lucky-me.html

Reality TV Show To Feature person Person with Asperger's Disease

Welcome back,

Reality TV has done it again. On the 15th season of The Amazing Race, disability issues will take center stage. This time, with a contestant with Asperger's Disease

http://www.disabilityscoop.com/2009/09/21/the-amazing-race/5453/

Funny clip

So,

I came this website in the process of researching for another post. While I don't agree with her methods of keeping tabs on human interactions with people of different disabilities. This gives a pretty accurate portrayal of what we go through every once in a while.
Sometimes when you get in these situations you can't help but laugh.

http://thedealwithdisability.wordpress.com/

Encouragement: Patrick Henry: A Closer Look At Passion

Hey Guys~

As I continue to read more about Patrick Henry and his life, I can't help but think him blessed more than most. Why? He knows what loves and has the gumption to stick with it; not many people do. But John Patrick Hughes says, "Sometimes it feels as if your passion has dried up and disappeared; when life seems to be just another day- up in the morning, stumbling through the routine, and falling into bed at night."

But not for his son. He still possesses a zest for life, uncommon in most adults. This "childlike enthusiasm" can be seen in every aspect of his life. I don't mean childlike in terms of youthful abandon or immediate gratification. This type of passion is different. "It's the passion we are born with and display when very young mass for, doing something because we love it and for no other reason," John Henry explains.

How is it possible to maintain this type of passion throughout your life?

I wish I had some long philosophical explanation for you; but it's quite simple. Patrick Henry values his time. While a majority of his time is spent coping with the realities of his disability, he doesn't allow that to cloud his perspective or the perspective of this family.

I don't know about you, but it seems to me that a lot of these lessons are a part of a common theme. That being said, I can't help but feel I am repeating myself over and over. As a result, I have decided to document exactly where I am in the audio book so I don't have to go looking for it over and over again.

Audio book disk 2 part 19

The importance Of Sacrifices

Welcome Back~



I hope everybody enjoyed their weekend; I decided to take September 11 off as a tribute and memory to those who gave their lives in order to save this country as we know it. That got me thinking a lot about the importance of sacrifices. Not only in terms of personal sacrifices, but the ultimate sacrifices. The ones that are done for others with no regard for one's safety or well-being. Personally, I can't imagine the type of courage it took to band together in an effort to foil the plans. Just imagine how many lives were saved in the air as well as on land. That whole day, people stepped up to become heroes by risking their lives. Firefighters, paramedics, or just your average "Joe" .

But then again, that's what America is about- what it's founded on. Not only did it take many trials and triumphs to get and maintain the freedom that we have and enjoy. But let's not forget the first and most important sacrifice- Jesus on the cross

Encouragement: The Source of Strength

So,

I'm sorry I'm more than a week behind .It's been one of those days that have left me speechless. Don't worry, nothing disastrous happened. I just have been given a lot to think about in terms of my future and how the world values have changed. Not to get too politically motivated, but I worry about my health care after my parents are gone. While I got my pump taking care, I got to hear one doctor's perspective and it was a scary one. I just hope people are well informed before they make decisions that could change the world.
Other than that, I feel like my mind is on overload today. I really don't know what else to say other than giving me a lot to think about on on a personal and emotional level

That being said, I thought this blog post was quite fitting for today
http://wwwourunexpectedjourney.blogspot.com/2009/08/hell-give-you-strength-when-you-need-it.html#comment-form

Monday

Welcome Back~

It's the beginning of another week and I find myself behind again. But at least I have something to show for it. I finally finished another chapter to my book.. Lately, I find myself distracted by that things on Facebook. I've also opened myself up to some new opportunities, such as becoming involved in Avon for another source of income. But I haven't really gotten into it that much because our family difficulties right now.

Anyway, I came across this website a while back and found it enlightening. It just shows you can find the face of God anywhere, especially in the eyes of a child .

http://exemplifyonline.com/weekend-word/weekend-word-september-5/

A Unique Look at the Football Season

Hey Guys~

As most of you can probably imagine, I am not a football fan. This is more than just because of the obvious reasons. After all, it just involves young men in suits getting tackled. What's the fun in that? Although, I have to admit the team does look kind of strapping in their uniforms; so it may have some benefits after all.

Still, it's not very often that we get to see a softer side to football. But I was quite surprised after looking over this article.

http://blogs.orlandosentinel.com/sports_bianchi/2009/09/tim-tebow-does-pregame-warmups-while-pushing-boy-in-a-wheelchair.html

Encouragement: The Value Of Disabilities In Different Countries

Okay,

So I realize I'm a bit behind. I don't know how many of my readers have been following me in regards to my series on Patrick Henry's book, I Am Potential. I will do my best to resume the series with the next two weeks. I just have tried finishing writing chapter 4 in my book than that has kept me busy. Look in this way, that gives you extra time to catch up on the review if you want to continue along with us. Again, the reviews are labeled under Patrick Henry .

For now, I found this article an interesting one. It shows how different countries are striving to find a useful place in their society.

http://videosfromindia.smashits.com/view/9378/differently-abled-children-showcase-their-talents

The harsh reality of a disability

Welcome back~

I'm running late as usual. Life has kept this little lady busy these days. I apologize, I'm trying out a number of new avenues in order to make money. This blog has kind of fallen flat in background. I often find myself struggling in the monotony of my life; I figure you guys deserve better than that sometimes.

Ergo, my silence..

But I'm back now.

A while back, I received this article from one of my regular readers of this blog. Reading it, I questioned why the Sensi gave it me in the first place; I didn't really know what to make of it. After all, I strive to look at the positive aspects of my disability. But then, it hit me. These are the harsh realities of having a disability without faith. Even the pictures portray the same mood.

Take a look.

http://www.sportsshooter.com/news/2266

Unique Program for Military Veterans with Disabilities

Okay,

So I was watching the news yesterday, waiting for Judge Judy to start recording on my TiVo when a segment on my Fox QC caught my attention. It featured injured military veterans, trading their wheelchairs for skis. The program was part of the "All can ski" event at San Antonio Texas's Sea World.
"We all have choices in life; we can either feel sorry for ourselves or move on," said one participant.

Encouragement: A first for everything

Hey Guys~

I found this article a couple days ago; it had been one of the top links on the America Online highlights. This is the first time I heard of this. I understand people can control their wheelchair by using their breath, but a boat. Wow, technology has really come a long way...

http://www.lemondrop.com/2009/09/02/quadriplegic-woman-sails-into-the-record-books/?icid=mainaimzonesdl3link3http%3A%2F%2Fwww.lemondrop.com%2F2009%2F09%2F02%2Fquadriplegic-woman-sails-into-the-record-books%2F

Other heroes and Advocates

Everyone,

I came across this article a while back. Actually, it's not a article, but an archive of articles featuring people with disabilities. They entitled the archive "Marathon of Voices". It's interesting to see the range of disabilities working towards one goal- advocacy and acceptance.
http://www.nytimes.com//interactive/2009/05/27/health/MARATHON_VOICES.html?ref=health

Personal Reflection: If My Grandmothers Could See Me Now

Hello again~

Not long ago, I received a letter from a fellow reader and relative. She wrote saying how this long has allowed her to get to know me on a more personal level. She reminded me about how my grandmother once encouraged me to write a book based on my life; the book would be a blessing to other people in my situation. If they could see me now..

I wonder what they'd think

I know this was a short post, but I am just now catching up.

Encouragement: Local Teen with CP Helping Those with Cancer

Welcome Back~

Let me begin this post by posing a question. How often do you look at the world , considering those problems of others as important as your own ? As humans, we have a tendency to have blinders when it comes to the world's problems. After all, we are just one person. What can we do?

The truth is, we can do a lot.

Take a look at this article for a prime example of what one person can do.

http://wcco.com/local/cerebral.palsy.teen.2.1130043.html

Song for The Day

Welcome Back~

Okay, so it seems like I'm playing catch up yet again. In reality, it's the 25th of August and I find myself writing for the 17th. I don't know whether it's because I am running out of topics to write about or I've simply lost my passion. How ironic, considering we've just been talking about passion in terms of Patrick Henry and this book. It's not like I don't have the words, but I don't feel like they are the right words to convey what I am going through or feeling these days. Nothing seems adequate enough.

I guess I should be grateful that I haven't lost my writing ability at all.

Anyway, as I was writing this post, a song came on my iTunes that I would share with you.

"These Days" by Chantal Kreviazuk
What's this life anyway?
What's it to you and me?
What's it to anyone?
Who are we supposed to be?
Make me a storybook
Write me away from here
I need a different now

Where we can wear each other for awhile
I'll len you my tears if I could borrow a smile
I'll get through tomorrow somehow today
Happy After...

Once upon these days

There's four roads to anywhere
Four ways to everything
We were unbreakable
We spoke our destiny
Let's take a moment out
Go were we never go
Let's make a new world now

Where we can wear each other for awhile
I'll lend you my tears if I could borrow your smile
We'll get through tomorrow somehow today
Happy After...

Once upon these days

Then one day we'll find
when we're looking back at this time
Wondering how we've come so far from this
When we close our eyes

What's this life anyway
What's it to you and me
What are we doing here
Who are we supposed to be
I'll take a better world
I'll take anything
I'll take our little world now

Where we can wear each other for awhile
I'll lend you my tears if I could borrow your smile
We'll get through tomorrow somehow today
Happy After...

Once upon these days

What's my point? Besides the fact that the song is from one of my favorite movies, The Sisterhood of the Traveling pants, it reminded me that this place is not my home. The troubles of this world will not last forever

Disability awareness

Okay,

So here is another unique look at how people are making sure disability awareness is on center stage. This time, the focus is Asperger's syndrome.

http://www.disabilityscoop.com/2009/08/04/aspergers-hits-the-big-screen/4472/

Encouragement: Patrick Henry- back on track

Hey Guys~



So I hope my last post on Patrick Henry helped my readers get back on track with my review of the book, I Am Potential. I realize it had been a while since I've posted on the book so I wanted to give a slight summary before I continued my analysis. For those of you that are new readers, you can always start at the beginning of my analysis by searching under "Patrick Henry" as a tag.



In my last review, we were exploring Patrick Henry's love for music. Not only did he have a talent for music, but this became an undeniable bond between father and son. Like I said, it was a love they both had and John Henry taught him everything he knew. Watching his son grow, however, he began to realize he didn't have the experience needed to take his son to the next level. So, his next teacher was Diane, a fellow blind person. Her blindness was never considered a disadvantage, but a advantage. That way Patrick was able to concentrate on the music rather than his technique.



At the age of 10, though, she suggested John Henry find someone new; she had done all she could for his son and couldn't wait to see what his future brought. Over the next few months, Patrick Henry struggled through his music lessons. As his father had predicted, the next teacher did his best to "correct" his skills, never taking into account the limitations of his disability. In the end, that teacher didn't work out leaving the Hughes family to wonder what was next for their son.



"Finding someone new wasn't easy and the search dragged on; then, as always when it's most important exactly the right thing happens," Patrick Henry says.

But God already had that figured out. As a youngster, Patrick and John often went to the mall and played on the more expensive pianos in the stores. He wanted to make sure that his son got the experience of playing on the real thing. During one of those visits, unbeknownst to them, a piano named Ms. Henda (I apologize if I've spelled the name incorrectly, I have never heard this name before) listened intently, saying that is she ever got the chance to teach such a talented young man, she would love to do so.

Years later, the two were back again searching for advice on where to find a new music teacher. Guess who was in the store- Ms. Henda. Immediately, she agreed to teach Patrick Henry, understanding the adaptions that needed to be made.

"Let's do what we have to do to get it done," Sure, the music wasn't exactly the same. But he enjoyed it just the same.

As their lessons progressed, she continued to be amazed at his accomplishments. She would give him tasks, assuming it would take a long time for him to learn; but he would be back the next time ready for more. He lived for the music, loved spending every waking moment at the piano.

I think his father puts it best when he says, "I think the litmus test for passion is how you react when your passion is taken from you,"

During times like his back surgery, he wasn't the same without his music or being able to play. But he came back stronger than ever

A tribute to Eunice Kennedy Shriver

Okay,

I would like to apologize, today made me realize I'm not as disabled- minded as I thought. Or politically minded, for that matter. It has been all over the news that Eunice Kennedy Shriver back today at the ripe old age of 88. Shriver is synonymous with her work with the special Olympics. Encouraging statements applauding her work came from millions of people, including Pres. Obama. He said in part of his statement, "She taught the world that no mental or physical barrier can restrain the power of the human spirit ."

See this Washington Post article for more information.

http://www.washingtonpost.com/wp-dyn/content/discussion/2009/08/11/DI2009081101008.html

Patrick Henry, I am Potential a slight review

Welcome back~

OK, so I know it's been a while since my last installment of I Am Potential. When we last left
Patrick Henry, he had just undergone surgery for his scoliosis. As he began to recover, he was allowed to go outside on his swing when the unexpected happened.. and broke his leg. In the last post, we also examined how they "coped "with such circumstances. Continue with me as I attempt to summarize what I believe are the most important lessons that can be learned through Patrick Henry and his family. Here is a slight review:

Do What You Can To Change What You Can

"I have learned that when situations are challenging, you have to rise up, or there'll get you down and keep you there.. "Says Patrick. He uses the example of playing with his brothers, saying that he could have given up. But what good does that do? You never know what you are capable of until you try

As I examined earlier, it all comes down to one thing when faced with the decision to do something. Fear. Fear of failure or inability to step outside one's comfort zone. There's one problem with that though. "If you give in to that fear, you might never know how good things could be or the problem might get even worse if you choose to ignore it," he says.

It was the hope he had for a better future and life they kept him going despite his disability.

Pursue Your Passion As If You're Life Depends on It.

Someone once said, "There is only one passion; the passion for happiness." (Patrick credited the person as Dennis, but I was unable to understand the last name.) For Patrick, this passion has always been music.

Why?

Because music has the ability to transport him places beyond the limitations of his disability. He is able to "see" with his imagination what a moon looks like or feel as if he is walking on air. He is limitless and anything is possible.

"Music is my key to life; the more I play, the richer my life becomes," Patrick says. As we explored earlier, this talent for music was discovered purely by accident while his father was babysitting. It had an unusual calming impact for the blind child; but as he grew, the talent became more intense, being able to play notes just by hearing them.

"After a while, I think dad gave up trying to figure it all out and just accepted that God had given me a wonderful gift,". Patrick Henry says .

For father and son, the piano allowed for some bonding time. "It wasn't just the music; it was sharing something we both loved," he said. As with life, it wasn't always fun and games because Patrick often found himself frustrated when his father had to work.

"I didn't like it but you can't always have things just the way you want." This father and son music games continued until about the age of five. At that point, John Henry knew he wasn't able to give him the experience he needed. The next teacher was Diana and like Patrick Henry, she was also blind.

Been kind of out of it this month.

Okay,

So I will do to admit that I have been kind of out of it this month. I just didn't feel like putting on a show that everything was okay when it wasn't. I've had a number of health issues distracting my time. Without going into details, things don't seem to be "processing" directly in my stomach ; part of me wonders whether these problems are disability related. Anyone else having the same type of problem? Just wondered. Anyway, I'm going to the doctor soon enough- I have an appointment next week.

Still, life is good. Or at least that's the way I'm trying to look at things this week. I had a few interesting opportunities come my way.

Anyway, a lot has been said lately about the use of stem cells to help treat people with cerebral palsy. Personally, I don't know whether I agree with the treatment or not; my opinion depends on exactly WHERE and HOW the cells are collected. Still, one can't deny the impact it has had on those willing to try the therapy. One of those even being a writer of TO THE MAX. I haven't heard any updates as to his progress.

Since it's such a controversial issue, I thought I would post this article.

http://www.portsmouth.co.uk/newshome/Parents39-delight-at-transformation-in.5535869.jp

What are your thoughts?

A picture is worth 1000 words

So,

Settling in for another rough day, I had every intention of not posting or just simply writing something about the different reactions we get as a disabled community. But that all changed when I realized I had another follower added to my site. Like I do with most of my followers, I like to see what their up against in this journey called "life" . So I decided to check out her blog. It wasn't just her short and sweet attitude and humility towards her son's disability that touched me, but the music she had on her page. She once again reminded me of how lucky I am to be alive and grateful. Whether or not, I feel it I am still God's child.

This website might provide a change of perspective from my readers. It certainly did for me.

Welcome to my readership, MK!
http://mybutterflyadventures2007.blogspot.com/

Who Moved?

Hey Guys~

Okay, so in reality I'm more than a week behind on this blog. I don't know what it is, but every time I think I have it all figured out, something knocks me off my feet again. I am reminded of an old saying used in semi-popular movies. It goes a little something like this, "Who Moved?". It's a rhetorical question, but often is supposed to people who have lost their faith or "moral compass"

Simple but poignant. This question causes people to really think about their relationship with God. After all, God (if you truly believe in him) is the one thing that remains constant in this ever changing world. He is our Creator, an all knowing and all seeing God who knows us better than we know ourselves.

In the midst of my difficulties, this came to mind. And so I thought I would share it with you.

Please keep me in your prayers as I have undergo some health issues and spiritual trials.

Thanks again for reading this blog.

Debbie

The End of Summer

Welcome Back ~

I'm behind again, I know. Lately, the weeks have passed by without me really noticing. It's not that I haven't really had fun this summer. I have. But I have come to realize that as adults, summer is just another day where you have to work in order to survive. After all, that's how we make a living, right?

I'm not so sure about that. Sitting down to write this post, I didn't really know what I was going to say. So I decided to highlight one of the links I had saved for just such an occasion. This features a article highlighting a new camp that takes children with disabilities and turns them into rock stars. For once, they don't have to concentrate on their disability, they can just be who they are- kids! Be sure to take a look: Http://www.ocregister.com/articles/orange-camp-sense-2477654-real-treated

As an adult, this camp reminds me of the special times I had at Camp Maria. The camp, specially designed for people with CP as well as other disabilities is now shut down. But I will carry those memories with me forever.

But who says kids with disabilities get to have all the fun? My friends at Joni & Friends are proving that summer retreats can be for families as well. Since the 90s, her organization has provided retreats from the daily grinds of life. Check out this website for more information:http://www.joniandfriends.org/pg_retreats.php

Another week comes to a close..

Okay,


So, another week draws to a close; it was a amazing one for me. We celebrated my mom's birthday and I was able to spend some time relaxing because I didn't have any appointments. That allowed me some time to recharge for the weeks ahead. Although, I have to admit I haven't done very well when it comes to exercise and stretching my muscles. There just doesn't seem to be enough time in the day to do it all, as I have explained in previous posts.. I guess I have to set new priorities.


Today, I had a interesting morning. Previously, I had set the 6: 30 am episode of Joni and friends to tape on my TiVo. Surprisingly, I woke up just as it started to tape. This episode featured a new hero of mine, Robin Hiser who up until today I didn't really know her. You see, Robin was born with down syndrome and like some friends I know, she is doing some remarkable things despite her disability.


But first, let me ask you a question.. What do you honestly think of when the word Down Syndrome comes into question? Mental retardation, low IQ, are some of the common responses when asked such a question. But like most people with disabilities, Robin strives to break down said barriers within minutes of meeting someone.

When she was born, doctors immediately brought up the idea of putting her into an institution. This was the typical recommendation of the times, considering that most people with down syndrome wouldn't be able to contribute to society. Her parents disagreed.

Please take the time to view this story.. I know you will be truly blessed. In fact, I know I was. So much so that I tried to paraphrase her story. But I just couldn't. It's better if you hear it straight from her mouth

I encourage you to visit the website and watch this video

http://www.joniandfriendstv.org/video.php?id=5

Encouragement: Just Be Yourself

Welcome Back~

Over the years, I continue to be amazed at how much God has blessed me in my life. All too often, people go through their life wondering what their to do in this world. I am very grateful that God allowed my gift for writing to surface right away; that way, I was able to harness my craft as well as see my personal growth through it all. I am not the only person to be blessed with this gift. A recent article highlights the remarkable story of a 12-year-old boy with cerebral palsy who undergoes art therapy. During this process, not only does he discover a God given talent, but realizes the importance of being yourself.

A basic note:Typical art therapy consists of a therapist helping the patient maneuver through the strokes and movements required to complete the drawing. The trouble with this is the therapist finds themselves doing most of the work, while the patient is along for the ride!

Take a look at this story here: http://www.post-gazette.com/pg/09204/985720-58.stm?cmpid=news.xml

My reflections: Time

Okay,

So, I've been thinking a lot about my use of time lately. My daily routine consists of checking Facebook, feeding my virtual pets and then I often get sucked into playing some new game my friends passed on to me. By the end of the day, I am left wondering where the time went. No one is promised tomorrow.. That's why we should value the time we are given.

Just my thoughts for today.. I promise there will be something disability related tomorrow.

Simple Lesson in Humility: Seeing beyond a Disability

Okay,

Even though it's not Friday, I thought this post was perfect for a simple and sweet lesson on humility. It's quite an eye-opener.

http://www.5minutesforspecialneeds.com/1528/seeing-beyond-the-disability/

Encouragement: How Far Would You Go to Tell People about CP?

Hey Guys~

I know it's been a while since I've regularly updated this blog, I'm sorry! I'm just now starting to get a hold on things. Maybe just me, but I seem to be having a hard time getting back into the routine of real-life and I don't know why. It's not like I have these amazing pressures coming back right after the cruise. Oh well.

Now that I have a lot of links that I can feature on the blog. Things should return to normal soon enough!

But back to the question I posed earlier. How far would you go to get people more involved in learning or helping out with your disability causes? According to a recent article, some people would go to great links. Ben Dobson is one such individual. Recently, he participated in the annual Benjamin Franklin Memorial Poker Run. During this event, hundreds of motorcycles gathered and drove around town, stopping at several pubs along the way. This event was put together in a effort to help people with CP as well as other physical disability.

So what makes Ben so special?

He actually rented a Harley-Davidson motorcycle to attend the event!

To find out more, please go to:

http://www.lansingstatejournal.com/article/20090726/NEWS01/907260542/1001/NEWS

Interesting Piece of News.

Welcome back~

So I am not usually one to post news articles on my blog. But I thought this one was quite interesting. Usually, someone can tell if you have autism- unless they are high functioning. So, I don't really see the problem. Maybe it can be controlled. Second of all, why would a higher up officer tell him to lie?

http://www.disabilityscoop.com/2009/07/21/autism-marine-plea/4233/

Finding Hope in Desperate Times

Okay,

So I know it's been a while since I posted. I've been sick and trying to figure a lot of things out in my life lately. But now I'm back.

Sinc the cruise, I've been thinking a lot about getting a job. I know my dad really wants me to finish writing my book and I do too. But that seems to be a second priority for me now. I just need to find a way to gain and maintain the motivation I once had for my life. I need to feel useful again to someone besides my family. In a effort to change things, I will do my best to write on this blog regularly. But I will be doing other things as well- such as submitting my resume to monster.com etc.

In times like these, I realize I'm not the only person struggling with employment. God must have realized this, because as if just by luck I came across these websites. The first is an introduction to the second website, a site that offers people with disabilities advice and tips on getting the job.

They look pretty helpful to me!

I thought I would pass them along..

http://specialchildren.about.com/b/2009/07/20/site-of-the-day-hire-disability-solutions.htm - a introduction to the website

http://www.hireds.com/index.php- the website itself

Encouragement: The Desires Of a Young Heart

Okay,

So my last post made it pretty obvious to me (as I'm sure it do to you) that I had a fabulous cruise with my friend. Although at times it left me tired and frustrated, I wouldn't have changed a thing. I met some amazing people on the Carnival Pride. Soon, it was back to reality though. I was once again reminded how much energy it took me to get through everyday. The training, having the patience to deal with my personal assistant. This was- and always will be - a part of my life. While surfing the web today, I decided to check on the recent updates of one of my role models, Joni Erickson Tada. Boy, am I glad I did.

Joni may be best known for her motivational speaking and radio shows. But, she should be recognized for her use of other people's stories to show the reality of the the glory of God. That's the main goal of her television program Joni And Friends. In one past episode, she features in the life of Renee Bondi- a woman paralyzed by accident after falling from her bed. Despite all this, she married her fiancé and had a son by natural childbirth. Doctors even told her she may never be able to sing again, but here she sits singing the praises of God everyday. Like me, she has the desires of every woman- to be married and with child someday. Like me, she asks God for the patience to deal with complete strangers everyday.

Hear her story story in her own words at:http://www.joniandfriendstv.org/

It's under Yours for A Song

Carnival Pride Experience: My Third Cruise

Okay,

As you may remember, I said this summer was going to be full of adventure. So far it's turning out to be so much more than I imagined possible. Recently, I returned home from a wonderful cruise to the Bahamas; this one was my third cruise. What made this one so unique, you may ask? Well, for one this was going to be my first cruise without my parents - I invited a college friend, Bethann Bennett instead. This allowed us with a very unique opportunity. Not only could we spend some quality "girl" time together; but my parents were given the chance to go on a vacation by themselves, which they haven't been able to do in a long time.

So it was settled... We would travel the Bahamas on the wonderful cruise ship Carnival Pride and they would travel to Alaska. Looking back, I can't believe the irony of it all. Bethann (“BA”) arrived in Virginia on Wednesday, July 1 to ensure that last-minute preparations went smoothly. We spent the next day shopping for last-minute supplies as well as looking at bridesmaids dresses for Bethann's November wedding.

On Friday, July 3rd, we traveled to the Port in Baltimore to catch the Carnival cruise ship “Carnival Pride”, which we lovingly called "a floating hotel" for the next few days. Being a former cruiser, I was amazed at the improvements the ship had made .Pride was much more accessible than all the others - I could actually turn my wheelchair around in the bathroom! After settling in, we did a little shopping on board and enjoyed The Carnival's opening show, which included songs with the word "fun" in them. This show is unique to Carnival because they are known as The Fun Ships. As we exited the Chesapeake Bay, you could see blasts of color in the distance. What a wonderful way to start the best vacation of our lives! The dinner was great, and we had the melting chocolate cake . We went to see the opening show in the evening; it was GREAT as always.

Saturday the Fourth of July was another day of calm seas and beautiful weather. I went shopping and got gifts for my nieces, Elizabeth and Rebekah! We enjoyed the day sunbathing on the deck and relaxing. The PRIDE is THE PLACE to be with a wheelchair. Our cabin was amazing, much more accessible than the cabins on my earlier cruises. We began getting to know the nice staff and shipmates. Tonight we listened to some karaoke and I actually got BA to go up to sing -- the only catch was I had to sing with her (I hope you dance - LeAnn Womack). And the lovely Donna from London was the karaoke hostess. It was also formal night and we got some nice pictures taken, including a picture of us with the American Flag for the Fourth!

Sunday July 5th was our 2nd day at sea, and we got to know more people and had a relaxing day at sea. Each day we would email my parents in Alaska and they would tell us about their adventures, and we would tell them about our adventures on the ship – the wonderful Internet.

Monday July 6th we landed at the Port of Canaveral for our shore excursion – but it did not go as smoothly as planned. We had to get up way early to leave at 9:30 am, and that was hard because we stayed on deck Sunday evening until 11:30 doing the Congo line. Then, the excursion company did not have a handicap accessible bus when we got ashore! So they quickly called aup another bus and we made it to the excursion – a canal boat trip, but a little late. We got back to the ship and set sail for Nassau Bahamas!!!!! I sang Karaoke on Monday night again. I think it is in my blood now. I even got an encore performance on Lido desk singing with my IPod! Go figure...not sure how that happened!

Tuesday July 7th – We went ashore (in spite of too many people blocking the stairways) and since I realized this was the trip of the lifetime, I had a HUGE shopping day in Nassau!!!! I got some great deals and tips from Luigi (the Cruise ship’s professional shopping counselor). We shopped at Del Sol for changing color shirts, then on to Diamond International, where I bought some wonderful jewelry. We came back aboard and went to the pool; it was neat. We were both really, really tired; so we relaxed watching a movie in our room and eating pizza.

Wednesday July 8th – was ANOTHER busy day. We went ashore at Freeport. Unfortunately we we're able to access the Caribbean beaches. But we could go shopping and shop I did! I bought a few more things, and ran out of cash. I am trying to make the best of my last days here. But I have to say that THERE IS NO PLACE LIKE HOME!

Thursday, July 9th – was our last day sea and it is was much more windy and choppy than usual. We spent the day relaxing and catching some sun. We have taken a lot of photos. Including some wonderful sunsets! This has been a vacation of a lifetime for both of us !

Friday, July 10th we arrived back at the Port of Baltimore and my dad met us and took us back to our home. BA and I unpacked our souvenirs and BA began a scrapbook while I place pictures on my FaceBook page.

Encouragement: Patrick Henry part three

Hello Again~

In reality, this will be my fourth post about Patrick Henry and his book. But my third installment using his book as my topic of "Encouragement". For those of you that have been following, Patrick Henry has explored why we should be grateful in whatever circumstance we are in, do what we can to change what we can, and their definition of "coping". In the next chapters, we will continue to learn about his take on pursuing your passion no matter what it takes.

Patrick Henry has never felt left out when it comes to playing sports like his brothers. He understands that everyone has their talents and should use them. For him, music is his passion. "Music is my key to life. The more I play, the richer my life becomes," Patrick says. Playing music allows him to interact with a world he hasn't seen, as well as transcend the limits of his disability.

A talent developed purely by accident..

As a young father, John Henry remembers the struggle he often had dealing with his firstborn son on his own. It wasn't until his father playing music on the piano that the baby would quiet down. Looking back, he realizes that his own love for music was more than just a way to put himself in the spotlight, but prepared him for this special role with his son. "Preparation to help me raise a special child, a child who would be limited in many ways, except when it came to music.".

Miraculously, at a young age, Patrick Henry was able to find notes simply by hearing them. "After a while, I think dad gave up trying to figure it all out and just accepted that God had given me a wonderful gift," he says. At two years old, he was able to play simple melodies and harmonies along with his father on violin

"This was our our baseball pitch and catch, a father and son enjoying each other. We would never play football, go golfing, or do any of the other sports I have longed for. But that was okay because God had another plan- a bigger and better version of anything I could have imagined," . John Henry says

I Am Potential: The Family's Views On Coping With the Difficulties In Life

Welcome back~

As I gear up for my vacation, I am trying to catch up with my posts for the week. I kept putting off posting because I didn't have anything newsworthy to mention for Monday and I hoped something would become available for my disability Google alerts. But it hasn't happened yet and I am running out of time. As a result, I am posting two discussions on Patrick Henry' book, I Am Potential. The first, continuing his book review with a primary focus on what it means to cope with a situation. According to Webster.com, coping as defined as "to deal with and attempt to overcome difficulties". But as I have learned from the Hughes family, coping is not necessarily overcoming the problem as much as it is "working through" it.

Or in Patrick Henry's words, "I have learned that when situations are challenging, you have to rise up and keep going, or there'll get you down ." He believes that many of the people he has met feels stuck where they are. These feelings sometimes stem from a fear of failure or getting out of one's comfort zone. "If you give in to that fear, you might never know how good things could be or the problem might get even worse if you choose to ignore it."

Like many parents, John Hughes and family never really can say they've got it all under control. After all, when you figure out the solution to something, another problem usually rears its ugly head. "So just when you think you've got the big challenges under control, something else props up to prevent your complete sigh of relief.. all of these things make coping anything but easy. But you have to always to moving ahead with the belief everything won't get better without you doing everything possible to make it so..."

In these circumstances, the Hughes family was never alone- even when they thought they were. John Henry reminds us, "God is there, waiting for an invitation to intercede. It may not come when you think it should or in the form you have requested, but exactly what is needed always arrives at exactly the right time."

Discrimination still exists, but it all stems from not understanding a person's disability

Hey Guys~


Okay, so I realize I am a week behind. But I have kind of developed different priorities this week. After visiting my friend and participating in her last musical recital, I continue to be amazed at how much things change- no matter how much we don't want too! But that's a part of life, I guess; learning to accept those changes and adapt to them. To be honest, that's the lesson I struggle with most in my current circumstances. I'm seeing my friends go out into the world and succeed and then I look at myself. My success is minuscule, compared to theirs. I just wish I was doing more. But then I am reminded my success is on a different standard as the world's . As a result, my dad has encouraged me to continue writing my book. It has been going well, but I am beginning to wonder whether my purpose has changed

Anyway, that's where my head is at right now. After I finish these updates, for this week and the next, I am planning to take a break for a while as I will be unavailable. I don't know how feasible it will be to update for the next three weeks.

Now, on to today's post, I actually came across this article thanks to one of my readers. At times, articles like these remind me that we are not living in a perfect world. As much as we would like to say that people with disabilities are not discriminated against, that's not always true. This article proves that. In summary, the article tells the story of a young boy who is acting out in the classroom. In response, the teacher along with his classmates "voted" him out of the classroom as a discipline. It was later discovered that the boy had autism. The teacher was later suspended, but most recently, she was reinstated.

Here is the full article:


http://www.sun-sentinel.com/news/local/breakingnews/sfl-student-voted-out-bn061109,0,6421556.story%20say%20no

The web isn't just for people in wheelchairs anymore!

Hey Guys~

As I have tried to point out, the web isn't just for able bodied people anymore. Over the years, technology has made it possible for people from all walks of life and disabilities to share their stories with others. Whether it is because of software that enlarges a page's font or simply reads the content to the participant, technology continues to amaze us. But in order for everyone to enjoy cyberspace, there are a few things to remain aware of:

1.) Perceivable- content must be clear to everyone

2. Operable- your website must be easy to navigate and find your way around, accessible by all types of software or platforms

Understandable- your information must be easy to understand by all ages

Robust- software must be current and interface with the newest of technologies

For more details about website accessibility, see the following page and click "Web Accessibility"

http://www.doitmyselfblog.com/

Where have I been?- a personal note

Okay,

So I realize it has been over a week since my last blog post. Surprisingly, I find my summer becoming a lot more hectic than most. During the past week, I have interviewed and trained a new personal assistant, had my last occupational therapy appointment and gotten little sleep. The therapist wanted me to be able to wear my hands splints at night or a majority of the time . In the midst of all this, my family and I finally hit a wall - we can't do it all. As a result, I kind of slowed down and lost my motivation. But then again, I'm only human. Now I'm trying to get back in the swing of things. Thanks for staying with me!

Best wishes,

Debbie

Encouragement: Patrick Henry, part two

Welcome back~

First off, I would like to begin this post with a message of thanks. Because of my busy life these days, I don't always have the time to look at my blog and reply to the comments I have received. But what I do have the chance, these comments give me hope and a reason to keep writing. So, loyal readers, thank you from the bottom of my heart. No matter whether we are strangers or friends, you are all a part of my life now. Thank you.

I figured since I started the Patrick Henry book review on Wednesday; I may as well continue it as part of the Wednesday series. After all, he is a source of encouragement after what he's been through. My last post about Patrick Henry takes us to chapter 2. This chapter begins with two appropriate quotes about change and acceptance. They are: "Do all you can to change what you can" and"God helps those who help themselves". This was something that Hughes family tried to live by during the first couple years of Patrick's life. During that time, Patrick Henry endured several surgeries: many were in a effort to improve the appearance of his "eyes". Born without eyes, the sockets had not formed properly, so if he was ever going to get some cosmetically, the muscles had to be stretched over and over again. During each surgery, the diameter of the sphere would be increased, so that eventually an ""eyes" could be inserted.

The first surgery for his eyes went according to plan; but the family was tested when they encountered complications during the second surgery to increase the size of the spheres. Patrick encountered an infection and wasn't able to eat for several days. His parents became worried. Was this how things were going to be from now on? Their happy-go-lucky son had disappeared and this was what they were left with. It wasn't fair. John Henry's response: "I knew that in the grand scheme of things we're never promised life is going to be fair, but this was going to far. At that moment, the comparison of what life had been like with Patrick Henry to what it might be was devastating.." While trying to eat at a family restaurant, everything changed though. Patrick Henry smiled and began to eat. "It was as if he had been lost in the desert and couldn't get enough of anything," he explained. Their son was back. If this had been God's way of making sure the Hughes family remained thankful for everything they had, let it be.

"It was a valuable lesson and reinforced how abundantly blessed we were to have Patrick Henry in our lives.. he [Patrick] had been the center of our universe and when that was taken away, a black hole had opened up.." John continued.

As well as his "eyes", the Hughes family did whatever they could to improve Patrick's arms and legs. This included arm splints and surgeries. It was later determined however that nothing could be done because their son have little to none growth in his legs. Like the rest of his body, it had not formed properly, leaving the necessary bone structures to walk.

His last surgery was at the tender age of 10. This time, it was for the scoliosis in his back. Not only would this surgery correct his back problems, but it would also add a couple of inches to his stature. This excited Patrick because he would finally be able to accomplish a lifelong dream- riding on a roller coaster

Patrick's back surgery was a success and recovery went swiftly despite an accident leaving one leg broken and in a cast.

Stay tuned as I continue to summarize the miraculous story of this young man and his family

A Lesson Of Faith

Welcome back~

I hope everybody enjoyed their weekend. The weather was quite pleased down here for a change. It's hard to believe summer is actually here; it's been a long time coming. I have a lot to look forward to this summer, including going to a good friend's recital as well as a cruise. In the midst of it all, I have hand splints and therapy sessions to go to. Through it all, I try to put my best foot forward. But is it enough?

At times, I really don't think it is. I'm not just talking about physical therapy or even splints. But of life in general. Do I actually spend time acting on faith? In truth, I don't think many of us have-myself included. The few that do take it to run with it-knowing that God will provide whatever is needed or that he will make a way when all seems lost. Take my friends serving as missionaries in Panama.. or the ones that just sit patiently, continuously praying for something to happen in HIS timing. How about their friends that constantly encourage you by a wall post on Facebook or a instant message just to say hello. I am blessed with such friends who are constant examples on acting on faith.

Acting on one's faith is always easy, but that's what it's most worthwhile. I have to be honest that idea for this was not my own. But it was inspired by that of a online friend. In her daily post, she shares the impact of having this kind of active faith.
http://jodyferlaak.blogspot.com/2009/06/thinking-about-faith.html

Encouragement: Patrick Henry story part one

Okay,

So it occurred to me today that I had promised my readers my review of Patrick Henry's new book, I Am Potential: Eight Lessons in living, loving and reaching your dream. I apologize for my tardiness in posting on this topic, but I was hoping for new developments in terms of disability related news. As this did not seem to be happening, I figured this would be as good a time as any. Many of you may remember me talking about Patrick Henry in a variety of blog posts. This amazing young man had overcome so much and done his best to live a life without limits, inspiring millions of people in the process. Born with a variety of disabilities ranging from limited use of his arms to life without sight, the lessons he can teach people are remarkable.



He begins the book with the most important lesson one could learn throughout his experiences of having a disability. That lesson: Acceptance. Not only for himself, but for his parents as well. Or as Patrick puts it, "When life hands you lemons, accept them and be grateful." At first glance, this may seem like an unspoken lesson for the Hughes family, but it wasn't always that way . John had always dreamt of a son who could spend hours with him playing catch, but that wasn't possible with Patrick. They had go of such dreams and hope for the best. After all, "You can't move forward until you accept where you are," Patrick says.


In the face of such adversity, one wonders if things would have been different had they known about Patrick Henry's disabilities. Of course, abortion wasn't an option for them; but would they have handled it differently had they known? Patrick Henry answers the question with something his mom always said, "It's another example of how the best blessings could be right in front of you but you don't see them because you forget that God is always there working things out behind the scenes,"



We've all heard these things before: "God never gives you more than you can handle" and "you have to move on and accept what is ". These are just some of the many pieces of advice that the Hughes family received.

Instead of denying the reality of the situation, they coped and adapted to their new life as a family. John's philosophy was: "If this was a, so be it. We'll survive; no, we'd do more than that . We'll do all we can to make the situation better. I felt that in my heart but I truly had no idea of the magnitude of our challenges.."

After all, what does wishing do? It gets us no where.

Stay tuned for more inspiring quotes from the book in later posts. I apologize if everything seems disconnected, but I am trying to bring you what I thought was most important.

Finding Myself Again

Hey Guys~

Another week and I seem to be behind again. Over the past few weeks, my days have been consumed by physical therapy as well as doctors'appointments. Don't get me wrong, I know they are an important part of the "growing" process. But I only have one life to live and can't spend it all doing what is necessary-I have to be able to look back on my life and say I have enjoyed every minute, treating my life for what it is.. a gift! Since moving to Virginia, I have kind of lost sight of this-letting other people help in deciding what's best for me. In the process, I've kind of lost myself.

Special needs college?

Welcome back,

Since I'm not going to be near a computer this weekend, I thought I would set this post to publish a little earlier. You may have noticed I've been focusing a lot on the importance of an education this week. Partially because it just happened that way, partially because I believe a good education plays a vital role in helping a person become who they are meant to be. The following article highlights an interesting proposal of a college for students with special needs. I don't know whether I agree or not because the idea separates people with disabilities from the real world longer than usual. This may make it harder for them to adapt when it is time to enter the "real world"


http://college-reviews.suite101.com/article.cfm/a_college_for_students_with_special_needs

Encouragement: Overcoming hurdles

Hey Guys~

Since writing about my personal experiences in college yesterday, I found this article quite interesting. Born with CP, eighteen-year-old Jasmine is graduating high school this Friday along with her classmates. What makes this such an accomplishment? For starters, she is unable to speak but uses a computer with a "specially designed device " that helps her press the keys. What strikes me about this article is that some people are still putting limits on us, even though we've proved time and again that every situation is unique and can be overcome. They automatically assume the worst for us.

Good luck Jasmine

http://www.carolinalive.com/news/news_story.aspx?id=308227

It's the simple things of life

Okay,

Once again, it seems like I'm behind on my posts. There has been a lot of of drama around my household this week, so it's been hard for me to get "quality" time on my computer. But when I did, I just wanted to relax and not think. Long story short, we are on yet another search for personal assistants. Out of all my dreams, I would have never imagined it taking this long or being this exhausting -and believe me I've had my experiences. I've been getting help from personal assistance since I was 18 at least. I hate to admit it, but Virginia has been one of the hardest states to find good PA's.

But I digress..

A while back, I was talking with my dad about how lucky I was to have such a positive college experience. Part of it due to the friendly students and staff. Granted, they were a Christian /Lutheran College-but they went beyond the call of duty adapting their college to make sure I could fully participate. It was during that time that I discovered what was as a person, beyond the confines of my disability. As well as college extracurricular activities, I also became a part of the "7th Heaven" club; this was a group of guys and girls they gathered at various dorms to watch CW's 7th Heaven. These girls often accompanied me, rain or shine, to the dorm just so I could take part. This may seem like a simple task, but it was a constant reminder to me that my disability didn't play a role in my friendship with them. What a amazing lesson, that was for me.

In short, I hope this personal story shows you that the little things in life make a difference. So, if you have a friend who is disabled or struggling, do something to let them know they matter to you today. It doesn't have to be a weekly club, just remind them they matter. You have no idea how it will influence their life in the long run.

PS. I am still a avid fan of the show since it went off the air. And I still keep in touch with many of my friends from the 7th Heaven club today