Encouragement: Young man with muscular dystrophy living life to the fullest

Okay ~

So it's official-this will be my last post of the year 2009. As I've mentioned in previous posts, this year flew by. It's been great, but it's been one of the hardest years of my life thus far. I have said goodbye to two closely members, moved to an entirely different state and uprooted my life. In fact, I had almost dismissed a very important part of my life. This blog. I can hardly believe I've written on this blog for almost a year. In that time, I've shared so much of my life-my heart, really-with you and I hope it's been helpful. As my father always says, "You never know how many people you reach from all over the world."

I have realized, though that I have forgotten some important things recording this blog. For example, when I first started, I had declared Wednesday's "Encouragement Day". To my detriment, I have forgotten to label many of my recent posts just that. Although many of them were quite obvious. Still, I'm sorry.

It seems quite ironic that I will be ending this year's post with an encouragement. It's quite fitting actually, since that was my primary goal for this blog- to encourage others to look beyond the limitations of their disability. Looking at the list of blogs on this page, I am not the only person with this goal. Reaching beyond one's limitations is not limited to blog writing, but in all areas of life.

I first found this article courtesy of the UCP affiliates website. This article tells the story of one such individual with muscular dystrophy.

Check it out..

http://www.washingtonpost.com/wp-dyn/content/discussion/2008/12/15/DI2008121501044.html

The week after Christmas

Okay,

So in just days few days, a new year will be upon us. Personally, it's hard to believe. It's amazing how time flies these days. It really makes you learn to appreciate the time that you have and not take things for granted. After all, you never know what the future holds . Look at me. A year ago I was a celebrating Christmas in the wintery state of Ohio, surrounded by my mom's family. On the other hand, this year with quite different. Instead of getting together this year, we figured it would be easier to cancel our Christmas get-together since grandma's death. It will probably resume next year, but even then things will not be the same. Another change is the weather. Living in Virginia, our family was treated to our first Christmas without snow.

Honestly, I am not ready to start fresh. I am afraid I will get into the normal mode of life and let time pass me by.. I am afraid it will forget the important lessons that loved ones who have passed on have taught me. Looking back, I do have some regret that I never got to know my grandmother for the woman that she was.. the young spirited woman I sometimes catch a glimpse in my mother's eyes. Part of her will always live on through my mother and for that I will always be grateful.. However, I'm sure there are stories I never got to hear. I'm sorry for that.

The same principle goes for my aunt. She was a quiet woman, never wanting to be a bother to anyone. They both taught me so much.

I don't want to go back. However, I don't want to forget this feeling- the feeling you get when something drastic happens to change your perspective. I'm beginning to wonder if that's why this happened- to remember what's really important in my life and who I am.. my dreams and childhood hopes for the future. Because that's what they did. They may not have traveled miles to witness to others or accomplish their dreams. But they did in their own way.

It's strange but in some small way, I feel a new sense of hope for the future. I can't quite put my finger on it, but I can't wait to see what God has in store for me.

On that note, here are some other children's dreams that came true this Christmas.

http://ucpeople.blogspot.com/2008/12/ballerina-dreams-come-true-at-cerebral.html

Advice for next year..

Well,


Another Christmas has come and gone. I hope everybody enjoyed it; I certainly did. Although many things were different this year, the purpose always remains the same. Christmas always comes, a constant sign of hope available to all. Over the years, the holidays has been commercialized so much that it has lost its true meaning both spiritual and seasonal. The true story of St. Nicholas revolves around a young man who once was a orphan who wanted to give back to society.

Anyway, I got what I wanted for Christmas this year.. the iPod touch. I thought this iPod would be easier to use than the regular one. After all, it only takes a finger touch to select a song. I was wrong and because of my reach limitations that makes things twice as difficult. In order to select a song, you must tap the song twice. Otherwise the iPod will think your finger is trying to drag down the list for other songs.

Another con to the iPod is that the movies play sideways. Now that wouldn't bother me if I could turn the iPod around every time I wanted to watch a movie. But someone isn't always around. That being said, it looks like I will return this one and get the classic version. Hopefully, that one will work.

These, as well as many more problems, occurr when trying to decide the right gift for your disabled child. I know it's a little late, but here is something to think about for next year. This is a list of things to ask yourself before deciding to buy your young disabled child a toy for Christmas. I actually wish they would come up with a list of questions for people of my age group. But some of these questions loosely apply

Hope you enjoy!
http://ucpeople.blogspot.com/2008/12/information-referral-buying-toys-this.html

Christmas is coming.. are you ready?

Hello everyone,

Let me first apologize for the scarcity of posts lately. I have remained busy with the usual Christmas buzz of shopping and family activities. That is partly why I love this time of year the most- it's the one time where we stop and focus on what's important. Sure, there is Thanksgiving; but that's only one day. Christmas is an entire season whose general principles of peace and love are at the center.

"JESUS IS THE REASON FOR THE SEASON "

I've seen this statement on several of the local churches lately. It's so easy to get caught in out in the routine of presents and gifts and forget what's really important.

Food for thought..

Front of The Class critique

Hi everyone,

I hope that you had a chance to watch the Hallmark Hall of Fame movie I mentioned earlier. They've always done great work, and Sunday was no exception. Whatever the storyline, the directors and producers stick to what's important- the heart. Watching Front of The Class once again reminded me how blessed I am to have a disability. Now that's not easy to say everyday.. But like Brad says, a disability can be your best teacher. He's right though. The most valuable lessons aren't learned in the classroom, they're learned through living life.

I'll be perfectly honest, I didn't really understand Tourette's syndrome that much. I mean, I knew about the ticks and everything, but didn't quite "understand". The movie accurately depicts realistic questions such as Are the ticks controllable as well as many others. They are openly honest about the common misconceptions of this neurological disease.

In the words of his students as he received an award for Sallie Mae's first year Teacher of the Year,

Tourette's syndrome taught him to...

1. "Keep going"

2. "Not to let it stop you"

3. "Not to let it win". (By that, he means his Tourette's [or any disability ] for that matter)

Tourette's Syndrome Takes Center Stage in New Hallmark Hall of Fame movie

Okay,

So I decided to post a little early this week. For that reason, this post is going to replace Monday's. But it will be worth it, I promise you. Tomorrow CBS will be featuring a new Hallmark Hall of Fame movie entitled Front of the Class. What's so special about this movie, you may ask? For starters, the movie focuses on the little-known disability of Tourette's Syndrome. Inspired by the real-life story of Brad Cohen, a young man who with the support of his family overcomes the odds to become a successful teacher. Follow this drama to see how he uses his personal experiences to help others like him reach their full potential. Patricia Heaton and Trent Williams star in this touching film.

This Hallmark Hall of Fame movie airs tomorrow at 9 p.m. on CBS. In most cases, the 60 minutes has a habit of running late, which alters the television schedule. So be prepared. Either way, I'm going to watch.

For more information, go to:

http://www.cbsnews.com/stories/2008/12/02/earlyshow/leisure/celebspot/main4642661.shtml

World Disability Day

Hey Guys,

I'm sorry I always seem to be running behind on my posts lately. Writing for this blog, I have come to realize it's a lot more complicated than most people think it is. I try to keep up with the latest disability news and share it with my readers on a timely basis. Still, I'm not perfect. I've read a lot of blogs that are more comprehensive than mine. But I'm learning something new each and every day. Take for example today's post. I didn't know that December 3 was officially World Disability day. To read more about how many people celebrated the day and what occurred, follow this link to:

http://yesugarden.blogspot.com/2008/12/december-3rd-world-dis%20more%20comprehensive%20election%20ability-day.html%20will%20be

Secret millionaires premiere on Fox

Okay,

So I just finished watching the Secret Millionaires premiere on Fox. It left me speechless. Let me just say it was just what I needed- a touch of inspiration and humility. The premise of the show is taking multi-millionaires and allowing them to live among the average Joe's for a week; during which they are asked to decide how to spend $100,000 of their own money to help those in need.

The program airs on Wednesdays at eight on Fox. Check your local listings for more information. I will be sure to watch.

Inspirational story about overcoming the odds

So,

Here is another inspirational story about a person with learning disabilities overcoming that possible and accomplishing their dreams

http://www.ldonline.org/ldnews/28257

Updates to the website

Hello everyone,

I am just stopping by to catch up on my posts. I'm sad to report that there is nothing new on the disability front lately. However, you may have noticed I have recently added some new websites to the sidebar. These are interesting and informative websites for people looking for more information regarding disabilities. Feel free to take a look.

Thanks for following my blog,

Debbie

New blog Carnival

Everyone,

The new blog Carnival is here. This 50th edition features articles articles centering around the theme of "I am". As you can probably guess, these articles cover a variety of topics, such as coping with a disability as a teenager etc.

As always, the Carnival outdoes itself. Feel free to see for yourself.

http://wheelchairprincess.com/blog/2008/11/27/i-am-hosting-the-50th-disability-blog-carnival/

The meaning of Thanksgiving

Okay,


If I'm being completely honest, the meaning of Thanksgiving is kind of lost for me this year. Don't get me wrong, I'm grateful for my family and friends as well as the many other blessings God has bestowed upon me. It's just that this year I'm stuck in a place I'm not so familiar with. Both literally and metaphorically.



In spite of it all, I am reminded of God 's promises. They are actively at work in your lives as well as mine. Sometimes they're just difficult to recognize. Unlike humans, His promises are tried and true. On the other hand, human promises are easily broken or dismissed. That being said, believers try to stay stand firm in their faith, knowing that God is ultimately in control. This is not always a easy task; as a result, we sometimes get complacent, forgetting that sometimes we need to forcefully live by faith.

Capturing disability through video

Okay,


During the campaign for president, I'm sure you noticed the rush to highlight this disability issues through video. Some organizations plan to continue this momentum.. In the coming months, the United Cerebral Palsy hopes to showcase videos of people with disabilities. This was their first installment and preview of what's to come:

http://ucpeople.blogspot.com/2008/10/capturing-disability-through-video.html

Follow-up

Okay,

Since my last post was on the power of discouragement, I figured this would be a good follow-up. Recently, disability blog carnival posted its 48th edition. This one entitled: Lists. Some topics include ways to recognize that you are not taking your disability seriously and many more

If you are looking for a laugh, this may be a good place to go

http://ihatestairs.org/disability-blog-carnival-no-49-lists/

Back to reality

Everyone,

Even though I am about a week behind on my posts, I figure it is better late than never. Some days are harder than others to remain positive. I'm not just talking about my disability. After all, look at the economy. People are wondering what the future holds. In times like these, it's easy to get discouraged. Believe me, I know.

That being said, I wanted to share a little story with you. This story tells of the courageous life of Dorothy Williams, a British missionary sharing the message of God's love in the 1930s. It came in part of a devotional I received from Joni and Friends . During one of her missionary journeys, she noticed that her colleagues who are nurses, seem to be in distress. She inquired why.

' "Oh, Mum, I am feeling much afraid today,"

This was Dorothy's response:

"Dearie, look at these shiny instruments on your tray." The British missionary picked up the pointiest one, then added, "The devil has a tray of instruments, too, and the shiniest and sharpest is his tool of discouragement - it's sharp because he uses it so often." The student nurse smiled, blushed, and then went on her way with fresh resolve.

Striking, right? But Dorothy is so right. Discouragement is simple, but it can have a huge impact. On a personal level, it can affect a person's self-esteem. On the other hand, it can stop us from doing so much. After all, much of our human actions are impacted by the way we feel rather than what we know we should do.

Think about that the next time you are discouraged. I certainly will

A Parent's Prayer

Greetings,
I know I haven't been writing much lately. Since returning last Wednesday from Ohio, our whole family has been battling colds. You know what they say, "When it rains, it pours." Well, that couldn't be more true. I know that things will be different though with both my mom's mom (my grandmother) as well as my Great Aunt gone. But they both lived great lives, true testaments to the power of a humble faith and love.


Lately, I have constantly reminded how life is short. Looking back, I kind of wish I had gotten to know them a little bit better- for the person they were etc.. But I can't. I can only move forward, making the best out of every opportunity that's given to me. That being said, let's move on to today's posts. Now that I think about it , it kind of fits with the message I had for today- "Making The Most Out Of Every Opportunity . "


Last Sunday, Extreme Makeover featured two stories of people/families with disabilities making the most out of their situation. The primary recipient is the Martinez family. Growing up, Dawn (the mother) always had a hard for caring for children. Naturally, after graduating, she decided to become a nurse caring for those dying of cancer. On the personal front, Dawn was happily married and eager to start a family of her own with her high school sweetheart, Emmanuel. Soon, they were married and gave birth to their first child- a daughter- they named Ell. Soon after, they were blessed with news that they were going to have more children- twins. However, both boys presented challenges straight from birth.

Evan was born with a genetic disorder which displays itself in the number of mental and physical disabilities. Alex, on the other hand, was born with several facial and skeletal problems that will require many surgeries in the future to correct. Currently, the family lives in a two-story house, which limits the the family's mobility.

In the episode, Ty Pennington points out that this week is about the way you look at people, especially people that have more difficulties than you do in life. ".. He [the father] doesn't see that they've got special needs as much as he sees their potential. What we've got to do now is give them a space to raise their children, let them dream and reach their full potential "

During the build, thousands of people with disabilities came to help, including Sam Malek. Despite having cerebral palsy, Sam owns a coffee shop called More than coffee. Not only does he serve coffee, but this 17 month establishment strives to employ people with a variety of disabilities.

"This is what God called me to do, I'm trying to change the world as they say. one cup at a time, one person at a time.. cause there's always someone else in need," said Malek.

The team was so touched by this story that they decided to remodel the shop as well. Upon
futher explanation, Malek hopes to increase the interaction between his employers and the community.

Truth is, I could go on and on about this episode. There were so many good quotable quotes and I don't think I could do it justice. I'm hoping they may have this episode on ABC.com pretty soon for you to check out on the web. Because it was worth watching.

Surprised by disability article

Everyone,

As previously posted, I will be heading out of town later this weekend. I seriously debated not posting anything for the rest of the week because my heart is not really in it. But then, I was reminded about several articles I had saved on the impact a disability has on one's faith. It seems quite appropriate considering what I'm going through. In this article, disability gives people a reason to hope. After all, look at the many times that God used his power to heal the sick, blind and deaf. People who in those times, many considered useless or unholy. I am reminded of one such healing, where God specifically tells a man healed of leprosy to tell no one
of the miracle. But the man can't help himself, he has so overcome with emotion. The end result is amazing in itself, a man is healed and the impact is global. People come from nowhere to hear of the miracle and of the person that performed it.

Check out Mark 1:4o-44 for more about this miracle as well as the many more that follow

Another important thing to note is that when Jesus reappeared to the disciples as well as doubting Peter after his resurrection, the scars of the crucifixion still remain as a testament to the miracle that just occurred. For those people that have faith, we each have scars. Those are a constant reminder of who we once were, sinners headed to an uncertain fate. That is, if it weren't for God and his amazing Grace.

Anyway, I thought it was an interesting read.

http://www.christianitytoday.com/ct/2008/october/15.100.html

Check out one person's response to the article at:

http://blessingsandglory.wordpress.com/2008/10/21/surprised-by-disability/

Your opinion is needed!

Dear Friends,

I know it seems like I have just returned, but I have to go out of town again this weekend. One of my dear aunts passed away. Please keep my family in your thoughts and prayers as we go through this difficult time. That being said, I will be running behind on my regular posts for next week. That is, if I feel up to doing them at all. When you are faced with difficulties such as these, it really makes you think about the sanctity of life. Questions like, "Are you doing all you can to present a positive perspective in your life?"or "What am I doing here?" constantly come to mind. I know it was all in God's timing and that she was ready to go, but it was just so unexpected for all of us. That being said, I am going to say what I always say to my readers. Please, think of this day for what it is. A gift from God. Where are you going to do to help someone out today?

But there is another reason for this post. I recently came across a way to make my blog a podcast and I was wondering whether my readers would like that. Your opinion is needed very much.

Again, thanks for your prayers,

Debbie

Accommodations in College

Everyone~

Okay, so I'm back from my weekend trip with my mother. The weekend was busy and quite demanding for both of us. I'm still recovering; as a result, Friday's post is not going to be a big one.

If you've been reading my blog for a long time, you've heard me talk a lot about my experiences in college- how they helped to make me the person I am today. Going to college on my own wasn't without its difficulties especially having a disability. Here is yet another article featuring things to consider before taking this huge step of independence.

The article can be located at:
http://media-dis-n-dat.blogspot.com/2008/10/dealing-with-disability-access-on.html

Encouragement: Another October, Another Disability Awareness Month

Everyone,

This is my second annual celebration of Disability Awareness Month in this blog. During this month, the main topics of discussion tend to be about the employment of people with disabilities as well and as the general understanding that needs to occur among American Society in regards to disabilities. The following is just one article that explores the impact people with disabilities have on employment.

http://www.edd.ca.gov/About_EDD/National_Disability_Awareness_Month.htm

The Impact of Disability on Self-Esteem

Welcome Back,

I hope everyone enjoyed their weekend. I will let you know how mine when I return as I am still out in town. But while I'm busy, that does not mean I have left you entirely. The following blog post makes some startling revelations on the impact of disability on self-esteem. Feel free to take a look:

http://jimb1962.blogspot.com/2008/10/disability-and-self-esteem.html

Cerebral Palsy blog

Guys,

It's that time once again. Friday, the beginning of a weekend. I have a in-between feeling about this weekend because I'm headed out of town. Family business. I am looking forward to spending some time with my mom and her family. As a result, I will not be back until Wednesday. That being said, I intend to have through Wednesday done before I leave.

The first installment starting today. I found this website helpful. It deals with my disability (cerebral palsy) and the foundation that provides support to parents.

Feel free to take a look..
http://ucpeople.blogspot.com/

Encouragement: President Signs disability diagnoses bill into law

Hi Guys,

Here's an update on some recent legislation related to disability issues. It's official- the disability diagnosis bill is now a law. Signed on October 8, 2008, the bill is renamed Prenatally and Postnatally Diagnosed Conditions Awareness Act . The law gives the Department of Health and Human Services permission to create a grant program to gather information about down syndrome as well as other prenatal and postnatal diagnosed diseases. This information will be shared with anxious parents who encounter such a diagnosis.

For more information, please go to:

http://blogs.edweek.org/edweek/speced/2008/10/president_signs_disability_dia.html

New season of Little People, Big World

Hello everyone,

As promised, I have something new planned for today's post. But I have a few things to say first. Over the past few months, a lot has changed for me. A new home, living arrangements, and new friends etc. It's all been quite difficult for me honestly. I have tried to continue the routine I had in Michigan, so that something remained the same in my life. But it didn't seem to help. It wasn't until today that it dawned on me. I didn't have something on a daily basis reminding me of how lucky I was. I had forgotten about one of my favorite shows Little People, Big World. Granted, I had my routine of my devotional and my Christian music, but I now realize all three work great together just for me.

Many of you may remember me talking about the show before. The premise: Despite being diagnosed with dwarfism, the Roloff family strives to live a normal life. Throughout past seasons, they have remodeled their home, started a new organization and overcame disasters. Now they are at it again.

You can look forward to the fourth season that starts tonight at eight on TLC. Check your local listings for channels

Back on track

Everyone,

I realize it's been a while. Since returning from vacation, I have been relaxing a lot more. I really haven't come across anything disability news worthy until now. I hope that changes soon, but for now I am going to try and put the enjoyment back in writing for this blog. I'm not making any promises though. It would help me a lot if my readers would point me in the right direction to some interesting articles.

This recent disability story should hold you excited readers until Monday. In Rockville Maryland, a new park was dedicated to the memory of Mattie Stepanek. This young man was well known for his inspiring poetry and writing skills. Although diagnosed with muscular dystrophy, he didn't let that stop him from being a peace maker to all he came in contact with. Even though he died in 2004, his memory still lives on.

On a personal note, I think this story was meant to be shared because I just happened to be watching the news and that came on. I have many of Mattie's books and they are inspiring. He was such a wise and courageous young man with so many lessons to teach. To read more about his story, here are three websites to get you started:

http://www.mattieonline.com/
http://www.myhero.com/myhero/hero.asp?hero=mattiestepanek
http://www.wowzone.com/mattie.htm

-- -- --

Citation for TV Program: "Fox 5 News at 6" News segment, . Fox channel 5 WTTG Washington, News at 6:00: pm, October 18, 2008

Encouragement: Contentment & Happiness

"I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want. I can do everything through him who gives me strength. "
Philippians 4: 12- 13

Everyone,

The above verse comes from today's sermon at the church we attended. I found it particularly helpful considering my recent move to Virginia and the current economic crisis. You may remember is that the is and important to be reminded about where true contentment lies. For many, this inner peace is connected to a job, a relationship or something else.

But in times like these, we are forced with difficult questions or situations that test the foundation of such contentment.

That being said, where is your true contentment?

Mine centers around the peace I have in Jesus Christ. I will admit I don't always live in it; I'm human and as humans we can to want to take control of the situation. But, the inner peace is something for me to come back to.

Reflections On Vacation

07

Hi there everyone~

Above are just some of the pictures taken from our beach vacation two weeks ago. For our family, the week's rest was a amazing time of renewal and refreshment. It was the most exhilarating experience to be able to wake up every morning hearing the ocean's waves lap on the beach. For the first time in a great while, I was at peace. Once again, I was reminded about what's really important in life.

Time.

Time to admire and appreciate God's beauty.

Time to be able to spend with family and friends.

It is times and scenes like these that renew my sense of wonder. How could God, someone so powerful, create Earth just for us? Why us? Why not keep the beauty to himself? To be honest, I don't know all the answers and I won't know many of them until I arrive in heaven. I only know that my God is a compassionate who created us for companionship as well as to serve as examples of his ultimate power and mercy.

Encouragement: Good News For Parents Of Children With Disabilities

Everyone,

So I continue to run behind on my posts for this week. It always figures that once you finish a task, something else arises. Such is life, I guess. I am trying to roll with the punches. Anyway, on to the bulk of today's post, I was checking my e-mail in a effort to "de-clutter" one aspect of my life and search for new topics when I was pleasantly surprised. It turns out the Senate is in the process of passing (or have passed) a new bill that helps parents in the life changing diagnosis of having a child with a disability. The bill ensures that they will receive the best prenatal and postnatal care; they will also be connected with the necessary emotional, physical, and social supports needed to raise someone with a disability.

Feel free to take a look for yourself:
http://www.patriciaebauer.com/2008/09/24/senate-passes-diagnosis-bill/

Another autism webpage

So,

I took another Friday off; I guess I haven't been up to writing much lately. I don't know if I ever can put into words the amount of adjustment moving to another state takes. After all, it's been almost 2 months and I'm still feeling some of the effects. But the least I have a vacation to look forward to next week. That's right, my family and I are heading to the beach and finally taking a vacation- the first of which since we moved. Anyway, that's the reason there will not be any posts for next week.

Today's post is going to be a short one. In actuality, I am still playing catch-up for the rest of the week. That being said, I came across this website looking at autism. I thought I would share with you. Despite my short analysis, it looks like a comprehensive website that explores all aspects of the diagnosis and treatment.

Feel free to check it out for yourself.

The website can be accessed simply by going to:

http://autism.expertinforeview.com/uncategorized/autism-an-incurable-developmental-disability

Encouragement: Not Just Going To College

So,



Here I am, late as usual. I don't know what to say except I'm sorry. A lot of things have been occupying my mind lately. Sometimes I feel that I'm not the right person to keep up with this blog- that there is someone with more experience than me. But then I somehow keep coming back to my writing here. And well, it speaks for itself. Anyway, I'm thankful for the opportunity to share my life and heart with you. That being said, thanks for sticking with me.

Today's post is a simple one. If you have been reading this blog long enough, you know I talk about how important college is to the growing process. It's where people really begin to find themselves- who they are and what they believe in. It's through these experiences that you find out what you're truly capable of. It's helpful to be prepared. Here's just one story about how a autistic young man's journey to college.

http://www.npr.org/templates/story/story.php?storyId=94728606&ft=1&f=1030

Here is another version:

http://www.npr.org/templates/story/story.php?storyId=94429083

Ready for a change?

Hello everyone,

OK, so I'm not really posting this blog post on Monday. Oh the beauty of being able to post drafts early or later. Anyway, I've spent the beginning of my week on the job hunt. It's been quite difficult actually. I'm kind of limited with my option considering I have difficulty using my hands. But I haven't give up hope yet. My dream job, for the time being, would allow me to work from home writing articles. At least until I get the lay of the land here and Virginia. Wish me luck..

Onto today's post, I don't know about you but I am ready for a change. Since moving here, I haven't really felt like I've done much or made a difference for anyone. That's why I am looking forward to the season premiere of The Biggest Loser on NBC. Oh, I know the show is primarily about losing weight; but the reality is that they are making a real change in their life- a positive one that affects all aspects of their life. I don't know about you, but that's a very inspiring thing to watch. Join me in watching people's lives change for the better. Their journey starts Tuesday with a two-hour premiere. Check NBC.com for details.

Encouragement: Disability is in the same no matter where you are!

Hello everyone,

I don't know what it is about me always writing my post late these days. I never seem to be focused enough before I get distracted and go on to another task. Oh well. I'm normal. Like I tell my friends, that seems to be the state of the human condition.. Lol! Since I'm running a little bit behind, I apologize to my readers if this post isn't as developed as most. The next one will be better.



Have you ever wondered what it's like coping with a disability around the world? I mean, I know we can argue that there is more that can be done for Americans with disabilities. Honestly, though I think we are quite lucky. To prove my point, below is a article which illustrates the lengths that some people to get that freedom. Read it and then see if your perspective on accessibility and equality changes

http://www.huffingtonpost.com/craig-and-marc-kielburger/seeing-ability-through-di_b_120624.html

Disability and politics, part two

Hello Everyone,

How's it going? I hope your week is going as well as mine. I'm sorry I didn't post on Monday, but that day was spent at the doctor's. Not to mention our family adventure at the DMV in the afternoon, trying to get everything transferred to Virginia. That was interesting. But it's finally done and can be taken off my father's "To Do" list. On a personal note, I was a little taken aback by the lack of accessibility at the DMV. I mean, my wheelchair could barely fit in the "booth" used to create photo IDs. Oh well, I'm sure many of my readers have the same problem at their DMV.

Speaking of readers, there is a new gadget I have put on my website. It helps me keep track of my readers and check how many people are following my blog. After all, this blog is for you and your input is important. So, if you have been following my blog for a while, please become a follower by clicking on the link under my readers. This will make it easier for you because every time you log on it will show you the updates I have made to my webpage . I would also love to know how many people are actually reading my blog. Sometimes I wonder.

Anyway, last week I posted a blog post on "disability and politics". Something I thought I would never do.. After all, I am not one to voice my views on this blog. I just present information that I think is useful for people with disabilities and let you make an informed decision. Well, last week I posted some articles on the McCain/Palin candidacy. As promised, here are some articles from the Obama campaign:
http://politicalticker.blogs.cnn.com/2008/09/09/biden-questions-gop-disability-advocates-on-stem-cell-research-2/

http://www.barackobama.com/issues/

Looking back, I forgot to provide the link to McCain website and his official perspective on the issues. I'm sorry about that, but here it is:
http://www.johnmccain.com/Informing/Issues/

Disability and politics

Hello again,

Okay, so I was tempted to leave Wednesday's post up a day longer before posting another. Because I believe that post was an important one. That being said, I hope my readers take the time to scroll down and read the previous posts and this one before leaving my website. I also didn't want to end up forgetting writing Friday's (today's) post.

Lately, there has been a lot of debate whether the McCain/Palin partnership will work for the next presidency. Now I am not one to force my views on this blog. However, I found these two websites that might help you decide for yourself. Once I find other websites defining the Democrat's view on disability issues, I will post them here. Because I know the importance of seeing both sides of a issue.

http://disabilitymatters.blogspot.com/2008/09/sarah-palin-scores-for-disability.html



http://www.patriciaebauer.com/2008/09/04/your-thoughts-please/

Encouragement: Stick To Your Story

Okay,
So I'm still running a bit behind. But I figure it's better late than never. That being said, I will be adding two posts today.. One of a encouraging nature , one of a serious nature. Let's get the fun started, shall we?

Since I haven't really written much this week, I have had a lot of time on my hands. I'll admit I have spent most of my time playing games on Pogo.com; I'm only human and sometimes I realize that it seems easier to spend your days on mindless activities rather than accomplishing your dreams. That got me thinking- I had forgotten about making God part of my day. Sure, I listen to Christian music and watch Tbaa. But something was missing lately. Then, I remembered. My devotional!

I began searching through my e-mail for Joni's daily words of wisdom. This one struck a chord; I thought I would share it with you. Keep in mind, this devotional is just a paraphrase. To get her words inspired by God delivered to your mailbox, go to the Joni and friends website along the side of this webpage.
-- -- --

Too often, being born with a disability means that people have a tendency to not take us seriously. In Wednesday's devotional, Joni Erickson Tada tells the story of Chuck, a grown man with down syndrome. Chuck and his friends were visiting church that Sunday from a nearby group home in a effort to learn more about the disabled community. As part of their service, Chuck was asked to stand up and recite John 3: 16. He did so eagerly and bowed before starting to return to his seat. The audience laughed.

Chuck's response: "That's when he stepped forward, stuck out his chest and insisted, "Don't laugh, I mean it! I really believe it!"

The congregation grew silent. Chuck has made his point. He wasn't just repeating something he had heard over and over through the years. He actually believed what he was saying.. Or as Joni puts it, " He was a grown man with a mind and a will to choose. He believed the gift of eternal life was serious, offered to him through the solemn sacrifice of Jesus Christ. His defense of the Gospel gave pause to the congregation. "

Chuck is powerful example of how God uses the weak to lead the strong. As Corinthians 1:27 says, "...God chose the foolish things of the world to shame the wise; God chose the weak things of the world to shame the strong"

Joni's point: Chuck's disability allows him to look beyond the superficial things of this world and focus on eternity. The reality is that sin is real, hell exists, and people will indeed perish if not for the life saving plans of Jesus Christ on the cross.

Just stopping by..

Okay,

So you are probably expecting something new and exciting today. Truth is, it's getting late and I have not come across anything newsworthy. I promise tomorrow I will catch up with my posts and not let you down. But for now, I came across a new blog Carnival that I thought my readers would enjoy. Check it out:
http://athenivanidx.wordpress.com/2008/08/29/44th-dbc-disability-superlatives/
My apologies,
Debbie

Web tools for the disabled

Okay,

So I am running behind for more than a week. For that reason, I am going to keep it simple. Here is a list of web tools I came across that are useful for the disabled community.

http://www.disaboom.com/Blogs/ecrowley/archive/2008/08/04/100-web-tools-for-the-disability-community.aspx

Encouragement: Music of My Heart

So,



I continue to run behind on my posts; I apologize. I just can't seem to find new and fresh subjects to talk about. Don't worry, I have always got my eyes open.. but for now, I've decided to get a little personal for today's post.


As I'm sure you've noticed, I have a knack for writing. I'm not bragging or anything, (okay so maybe a little); but I have always had a passion for it. For as long as I can remember, I've realized the influence that words can have over people. Through words, hearts can be stirred; this stirring often results in a miraculous change. They realize that their life's important and are inspired to go after a long lost dream.



When I publish my books, that's what I hope will occur for for my readers. A positive change. Unfortunately, many books in today's market focus on the secular world and what they think is important. My books will go deeper .

What's my point to this post? Do what you love. You will like getting up in the morning; plus, you never know what kind of influence your passion for life will have on those around you. Look at the example that the 1999 movie Music of the Heart gives us.. a music teacher leaves her comfort zone to bring the gift of music to the streets of Harlem

Art Without Limits

Welcome back, everyone!



Due to the fact I am running so far behind on this week's posts, I have decided to get right down to business. As you may recall the title for this blog is called A Life Without Limits. This philosophy is not one I thought on my own; but, it has had been passed down through the generations. Granted, it has a variety of different names over the years. It has been called a movement of equality, one of accessibility and many others. But the theme remains the same. Focusing on our ability, rather than our limitations.

Anyway, I came across this article on the Internet which highlights a new nonprofit organization doing just that focusing on the area of arts. Please check it out:

Http://media-dis-n-dat.blogspot.com/2008/08/new-integrated-theater-hopes-to-change.html

How do you react towards the disabled community?

Okay,

I figured since I went ahead and posted Wednesday's post; I might as well go ahead and finish out the week.

Let me start off with the question:

In general, how does the public react towards a disabled person?

I came across this article that explores this question as a pertains to the business world. What NOT to say to someone that is disabled.

Feel free to take a look:

http://www.diversityinc.com/public/3382.cfm

Encouragement Where is your focus?

Hello everyone,


The last few days have passed by in a blur for me; I really haven't had the chance to write. It only complicates matters when I am having troubles finding subjects to write about. Oh well. I am happy to report that things are starting to look with my cerebral palsy. Over the past few months, I watched in frustration as my disability has become more restrictive with unbelievable tenseness in my arms and legs. It prohibited me from even doing the simplest of tasks, such as dialing my cell phone. Well, I am turning over a new leaf.. This week, I met with my new Virginia doctor who is going to help me manage my baclofen pump and hopefully regain some of what I have lost.



Which brings me to today's question.. What is your focus in life?

For some, this may be a difficult question to answer. After all, every day the media bombards us with stories that they think are important. Most of which are always negative. For me, I find solace in my morning routine of reading my daily devotional and watching Touched by An Angel. By now, my readers may already be familiar with the show and are fans like me.
This show features Della Reese, Roma Downey, and John Dye as messengers of God sent to help humans in trouble. The message is always the same no matter what: "God loves you. "

No matter what I am doing or how I'm feeling, I am reminded through that one hour show that I am not alone.

For more information on this show, you can go to:

http://www.hallmarkchannel.com/publish/consumer/home/shows/touched_by_an_angel.html

Living Independently

Hello everyone,

I know I haven't done the best job at keeping up with this blog lately. Truth is, I haven't felt much like writing. Since the move, my mind has become easily distracted and focused on one topic again. How am I going to get myself living independently to the standards I was in Michigan? Turns out, the answer is way more complicated than I ever imagined and my patience seems to be wearing thin as I go through the necessary process I need to receive services from Virginia.

If you are at all familiar with my blog, the idea of independent living is a common theme. The help I received from state funds allowed me to live in dorms with the help of personal assistants etc.. But for a more comprehensive look at living independently, go to: http://lifefaithdisability.com/2008/08/08/independent-living-101/

Reflections on Personal Life

Okay,

So I had only intended on taking a break for a week but it turned into two weeks.. a busy two weeks at that! But if there is anything I've learned is to be grateful for every moment you're given because you can never get it back. Also, the most memorable moments in life are the unexpected and unplanned. Those are the ones that make life more of a journey, rather than
a deadlock of day to day tasks.

Over the last two weeks, I've witnessed three important people in my life enter into two different stages of life. A baptism and the wedding. They both symbolize the beginning of new life; but in different and unique ways. Through baptism my niece was dedicated to the Lord, in the knowledge that she might grow in faith and learn the ultimate purpose in her life-- to glorify the Lord in everything she does.

During the wedding of two of my close friends, I was reminded of that same commitment. Only this time it involved the unity of three people-- man, Woman, plus God. I watched as two souls became one, two chapters combined to complete a life story that was obviously ordained. I can't wait to see what the Lord has planned for those two. I'm sure it's going to be great and change a lot of people's lives.

That got me thinking. I'm beginning to wonder what God has written on the pages on my heart. I'm trying to be happy with where I am right now. I have a great family, a new house, wonderful nieces. But I can't help thinking that things could be better.

Please God, help me be satisfied with my life right now until I can see the words you have written for my life again.

Something To Live By

Everyone,

I came across this today. Although I am still taking the week off, I thought you might enjoy this..

CHRISTIAN WAYS TO REDUCE STRESS .

An Angel says, 'Never borrow from the future. If you worry about what may happen tomorrow and it doesn't happen, you have worried in vain. Even if it does happen, you have to worry twice.'

1. Pray

2. Go to bed on time.

3. Get up on time so you can start the day unrushed.

4. Say No to projects that won't fit into your time schedule, or that will compromise your mental health.

5. Delegate tasks to capable others.

6. Simplify and unclutter your life.

7. Less is more. (Although one is often not enough, two are often too many.)

8. Allow extra time to do things and to get to places.

9. Pace yourself. Spread out big changes and difficult projects over time; don't lump the hard things all together.

10. Take one day at a time.

11. Separate worries from concerns . If a situation is a concern, find out what God would have you do and let go of the anxiety . If you can't do anything about a situation, forget it.

12. Live within your budget; don't use credit cards for ordinary purchases.

13. Have backups; an extra car key in your wallet, an extra house key buried in the garden, extra stamps, etc.

14. K.M.S. (Keep Mouth Shut). This single piece of advice can prevent an enormous amount of trouble.

15. Do something for the Kid in You everyday.

16. Carry a Bible with you to read while waiting in line.

17. Get enough rest.

18. Eat right.

19. Get organized so everything has its place.

20. Listen to a tape while driving that can help improve your quality of life.

21. Write down thoughts and inspirations.

22. Every day, find time to be alone.

23. Having problems? Talk to God on the spot. Try to nip small problems in the bud. Don't wait until it's time to go to bed to try and pray.

24. Make friends with Godly people.

25. Keep a folder of favorite scriptures on hand.

26. Remember that the shortest bridge between despair and hope is often a good 'Thank you Jesus.'

27. Laugh.

28. Laugh some more!

29. Take your work seriously, but not yourself at all.

30. Develop a forgiving attitude (most people are doing the best they can).

31. Be kind to unkind people (they probably need it the most).

32. Sit on your ego.

33. Talk less; listen more.

34. Slow down.

35. Remind yourself that you are not the general manager of the universe.

36 . Every night before bed, think of one thing you're grateful for that you've never been grateful for before. GOD HAS A WAY OF TURNING THINGS AROUND FOR YOU. 'If God is for us, who can be against us?' (Romans 8:31)

Amazing People, part three

Okay,


I am running a bit behind. I haven't had the best week this week. Being in Virginia has been fun and different, but I guess the changes are getting to me. I'm just not myself. As a result, I think they be going to take a break for a week. But I have decided to finish this week out strong. Ironically, this post is is one of encouragement- which I could use right now.

Today's post features music artist, Renée Blonde. What's so special about Renée? Like me, she believes in the power of music to inspire and motivate people. Not only that but she is doing something she loves- something no one ever thought she would do again. You see, there's something I haven't told you. Renée is also paralyzed from the neck down. The rest of her remarkable story can be accessed on the today's Christian woman at:

http://www.christianitytoday.com/tcw/2001/mayjun/2.36.html

Amazing People, continued.

Okay everyone,

Since I took Friday off, I have decided to extend my Amazing People Series until Wednesday. This got me thinking I still haven't finished my series on Grown-up Girlfriends. In fact, I had almost forgotten about it. I do intend on finishing this series, I just don't know what kind of impact it's having . After all, it's just my notes. Just a heads up.

Anyway, it's already been a long day. Our Internet and cable had been out virtually all day; although the Internet is back up my television is still acting weird. As a result, I have decided to take the easy route and highlight another person I had previously talked about not too long ago.

His name is Patrick Henry. Despite being born with multiple abnormalities, his parents choose not to treat him any differently. Though unable to see, he still participated in his high school marching band with the help of his father who pushes his wheelchair through the the formations while Henry played the trumpet. Henry's story touched the lives of millions when he was featured on extreme makeover a few years back. He continues to do so, inspiring millions to reach for the stars and no matter what the circumstance. For more information or a look back at my previous post featuring Henry, please go to:

http://alifewithoutlimitsrollinintothefuture.blogspot.com/2008/02/encouragement-patrick-henry.html

Also, for more information about Henry himself, please go to:

http://www.patrickhenryhughes.com/

Please note I do not know him personally

Encouragement: Amazing People Doing Amazing Things, Despite Their Disability

Hello everyone,

I'm sorry if yesterday's post was in any way offensive to my readers. I had just heard a lot about the article in recent news media and figured something had to be said. Living with a disability is not as bad as the survey makes it out to be. Sure, a disability can make things difficult; but that's a big part of life. It can help you build character and make you look at yourself in a totally different light.

As promised, I have decided to highlight some of my favorite people who are out there in the world doing amazing things despite their disability. The first two of which is Joni Erickson Tada. I'm sure many of you have heard me mention her before, that's because she has been such an inspiration to me. To make a long story short, Joni was paralyzed in a diving accident. Despite the paralysis, she continues to serve as a positive role model throughout her community and around the globe. She speaks to thousands as a motivational speaker, using her disability to point out the real source of life, Jesus Christ. She also travels the world supplying undeveloped countries with wheelchairs.

For more information on her other missions, you can see some of my previous posts at:

Http://alifewithoutlimitsrollinintothefuture.blogspot.com/2007/02/encouragement-of-day.html

Speaking out.. Sometimes We Don't Give Life Enough Credit

Okay,

First off, I have passed by the subject several times thinking this is just minority opinion. After all, not everyone believes that having a disability (physical or otherwise) is the end-all of life, right? According to all the media attention, it speaks with a negative perception of disability. In other words, people seem to prefer death over disability. Being a communications major, I question the validity of such a survey- how it was done, how many people were surveyed, how the survey was distributed etc.

On a personal level, I can't help but be appalled. After all, it is people like me that the media is speaking of. They are not giving the power of the human spirit or life itself enough credit. Yes, sometimes it would be easier to give up; but think about who you would be leaving behind. Now, some people may say, I have no one. I once heard a saying that went something like this, "Never forget you are someone in this world, because you mean the world to someone. " That's absolutely true. People are impacted by you, by me whether we realize it or not. To dismiss that fact would be a great disservice.

I'm sorry but I can't help but think it's articles like these that help to encourage the public view. It's hard enough having to deal with the realities of a disability, but to be pitied for it. That's makes it twice as difficult. You see, having a disability is more of a inner battle then an outer one. Every day is a conscience choice to live my life, despite my fears, insecurities but most importantly, my feelings. I choose to live for something bigger than myself. In my case, it's my faith. For some, it may also include family and friends. So, if any of my readers ever happen to encounter a difficult situation, please give yourselves a chance. Don't give up. Life is worth living. No matter the circumstance.

To my disabled friends, let's keep living proving the article wrong. Everyone on this earth can make a difference. In fact, I think I'm going to make this week a perfect example. For the rest of the week, I am going to feature people who are disabled that have made a difference with their lives. Some of them have been featured before on this blog, but I think this is so important.

Sincerely,

Debbie

___________

Below is another person's view on this controversial article

Please feel free to take a look

http://fatjacksrants.blogspot.com/2008/07/us-perception-of-disability-not-good.html

Disability dolls.. a good thing or a bad thing?

Okay,



So there has been a lot of debate over the introduction of "disability dolls" . On the one hand, I think we do need more representation of disability out in the world. On the other hand, I'm not sure if this is the kind of representation we need- pointing out our differences instead of our similarities.

Let me know what you think

http://fibrofog.wordpress.com/2008/07/01/disability-dolls-a-blessing-or-a-curse/

Encouragement: Two Approaches Towards The Same Goal of Change

So,

I didn't really feel like writing today. Partially because I didn't know what to write about; let alone I have all of these links that I have saved that don't relate. My solution is to take you on a little trip down memory lane and then try to connect these two links of stories together

As I've said before, change has always been difficult for me. Take now for instance. I am living in Virginia away from everything I know and love. Of course, my family is here. But the reality is, I have to start all over here. New friends, new job etc. Looking back, I thought it would be different. Exciting, adventitious and refreshing. But through experience, I have learned it's not always like that. In fact, changes can bring on the most challenging times of your life. On the other hand, change can sometimes bring growth and understanding.

Here are two other examples:

http://www.patriciaebauer.com/2008/06/24/mom-challenges-stereotypes-about-spinal-cord-injuries/
http://video.msn.com/video.aspx?mkt=en-us&vid=44331b58-e099-4e9a-ac50-45cb64d7a324&fg=rss

Jesus Christ is in everything

Okay,

So it's a Sunday and I couldn't help writing a post early. I feel like I should have gone to church today, but I can't. We don't have a church here yet; I know at some point we will though. That's good because I need somewhere to belong right now. I thought about this yesterday while reading a blog of my friends and trying to catch up on the hundreds of e-mails I had.

One of the earlier blog posts caught my attention. It was "Finding Jesus Christ in Cerebral Palsy ." That is a very bold statement. It's not a statement really but a declaration. The author continues by saying that as he got older he began to stop wishing to be healed and saw his circumstance for what it was.. a gift from God. Using 2nd Corinthians 12:7-10, he supports his assertions by saying every circumstance - even his disability- is a unique experience that is meant to bring glory to God. That struck me. I had always been told that while I was growing up. I believe that too; it's just that as you get older, the world tries to get a hold of you. It's a constant struggle to remain focused. Another verse that pertains to this topic is 2nd Corinthians 12:9 which says,

But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me.

Having said that, I am also reminded of an old college saying,: "... that in all things Christ must have preeminence ."


http://lifefaithdisability.wordpress.com/2008/06/28/christ-in-cerebral-palsy/

Fourth of July celebrations

Greetings From Virginia,

OK, so I'm back. Not up to full capacity, but I'm back. At least the Internet is up and running, so I can write and catch up on things- like this blog, e-mails, etc. I am grateful, I just wish my TV were acting up. Oh well, we can't always get EVERYTHING we want.

Anyway, enough rambling.

Today being the fourth of July, I am spending it with my family- everyone including my brother and nieces- at a neighborhood block party.

I was going through my mass of e-mails and conveniently found this. The most recent blog carnival whose topic is celebrations. I thought it was appropriate.

http://pipecleanerdreams.blogspot.com/2008/06/disability-blog-carnival-celebrations.html

Enjoy your weekend.

See you next week.

Debbie

Welsh minister calls for greater disability awareness

Okay,

They should be my last pre-published post since I probably will be back up and running next week. No promises though. I found this interesting article. Please take a look.
http://ganolen.wordpress.com/2008/06/11/182/numeral

Getting settled

Okay,

So at this point, I may be getting settled at our place in Virginia . I don't know when I will have things fully up and running again. For now, this will have to do for today's post. The following link is a book featuring encouraging essays on how some fathers cope with having a disabled child..

http://cedir.blogspot.com/2008/06/uncommon-fathers.html

Interdependence and vulnerability in society

Okay,

Two days ago, I discussed the massive amount of responsibility that having a disability has on a person. Today's post sort of goes along with the same subject. In both of the links below, authors explore the importance of the interdependence and vulnerability in society. Why? Because it humbles us, making us realize how lucky we are; it also makes us realize that having human contact is an essential part of life.

Please feel free to take a look:
http://www.npr.org/templates/story/story.php?storyId=91244099

Note: this second link is a part on the Disaboom webpage on which you have to subscribe
http://www.disaboom.com/Blogs/srains/archive/2008/06/08/discovering-the-strength-of-disability-interdependency.aspx

If I Knew Then..

Okay,

As you read this, I will probably be at home in the midst of boxes and packing paper. It certainly is going to be a change. But I am ready to move on; it's strange that as you grow you began to view your life differently. I have big hopes and dreams for this new chapter in my life. Hopefully within the next couple of years I will find the person I want to spend the rest of my life with and settle down. So I did that for a for now, I will enjoy being single. Taking each adventure as a stepping stone towards making me the person it and future wife that I want to be.

That being said, today's topic is one that I borrowed from the 39th annual disability blog. The topic is: If I knew then.

To be honest, I myself am not quite sure what they mean. To me, it means: If I knew then what I know now, would I do anything differently? But you can see it for yourself, the blog can be accessed at: Http://wheelchairprincess.com/blog/2008/06/12/if-i-knew-then-disability-blog-carnival-39/

With disability comes great responsibility

So,

It's Friday and it's hard to believe it a few days I will be traveling across a few different states. I am unsure about a lot of things right now, but I'm hoping for the best. I have a couple posts already planned for you in the coming week, so look out..

Anyway, I have always told my readers that I wanted to make sure every post was written in a positive light. I think the following links supports me in this assertion . Like me, the author believes that we are all supposed to be role models in whatever situation we are in. Another words, with our disability comes great responsibility. We often are seen as beacons to those that might not have none, showing people that anything is possible even in the darkest of circumstance. But that is partly because of what we hold dear in a life. For some, it might be faith, as it is for me. Still, I'm not perfect, no one is.

That being said, the author of the blog below explores this idea even further and presents a startling connection between a father and son as support. Please watch the youtube it will bring tears to your eyes.
http://adhdgift.com/with-disability-comes-great-responsibility

Encouragement: The Ministry in South Africa

Hello Everyone,

Since I am starting a new adventure on this road called "Life", I thought I'd feature some people who are doing the same. A newly married couple from our church is answering a call to Ministry in South Africa. They will serve as the people that oversee a guesthouse meant for missionaries who come to visit from time to time. Another aspect of the job is overseeing the finances.

The couple did not take this decision lightly; they had visited the country before on a "vision tour". During this time, they got involved in church activities, immersed themselves in the culture. Despite the small church size, (around 180 people), they feel God has led them there to serve as a influential part of Far Reaching Ministries. As well as ministering to people, they will participate in worldwide Christian functions such as Passion Kampala. This is a free two day concert for college aged students to hear the Word of God.

For information on any of the above agencies, go to:

Far Reaching Ministries

http://www.farreachingministries.org/

or

Passion Kampala

http://www.268generation.com/worldtour/lowbandwidth/index.php?filename=kampala-english.xml

Life of The Disabled Community

Okay,

It's five days until I began part one of the big move to Virginia. It's been a long time coming, but it's finally here. On Saturday, I leave for the weekend and then only return to retrieve my stuff on Monday and Tuesday. Then we proceed on to part two- taking a road trip to Virginia. There are still some basic details to be cleared up, but hopefully God will take care of them soon enough. I don't know the next time I'm going to have Internet after Tuesday of next week, because we are getting the cable and everything turned off around that time, so I am hoping to have some of my posts pre-published. If my readers don't hear from me, you'll know why.

Anyway, on to today's post..

Have you ever wondered what it would be like to live someone else's life?

A new and controversial show on FX is trying to be a average people just that chance. In this eye-opening reality show, people are given a month to live as the other person would. They encounter the same difficulties, trials and triumphs that anyone would in their situation .

In Sunday's rerun, former NFL football star Ray Crockett wonders what it would be like to be disabled. During the first four days, he realizes he is at a distinct advantage having the money to make his home handicapped accessible. His point is made even more clear when the house of his disabled mentor . During the month, Ray also gets involved in such activities as wheel chair rugby and watches as someone undergoes rehabilitation therapy.

-- -- --

Citation for TV Program: "30 days " , FX channel 50 Detroit, at 10: 30 PM., June 16, 2008. (Original air date: June 10, 2008)

A special gift on his graduation day.

Hello everyone,

I know I've been running behind the last couple of days. That really can't be helped, buying a house in Virginia has gotten me and my family on a emotional roller coaster. But things seem to be looking up. Anyway, I got this link just today from a close friend. It's amazing what people can do if they really put their mind to it.

http://www.foxbaltimore.com/players/news/cover_story/vid_295.shtml

You may have noticed..

Okay,

So you may have noticed a new inspirational link on my page. This one holds special purpose in my heart, not only because of the people it involves, but because of the mission it takes on. You see, the blog not only follows two of my closest friends on their journey to become a newly married couple; it also follows them as they answer a call to the mission field. Where are they going?

Panama

For more information, feel free to go to:
http://www.thelivingletter.blogspot.com/

Alarming facts

Hi Everyone,


I came across this article due to my Google alerts. It's amazing to me that even though we live in the United States of America, it's still a daily struggle to get the special education needed for the disabled community. I guess I was one of the lucky ones to have the money and parents who saw what I needed to get a better education and stood firm until I got it. I think that's all it comes down to- knowledge of a disability and how to help your students excel in the classroom.

http://peidisabilityalert.blogspot.com/2008/05/one-quarter-of-disabled-kids-not.html

Faith Versus Works

Hey everyone,


This last weekend has been a difficult, yet rewarding one. After an endless search and what seemed like an impossible circumstances, we finally have a house. It's very similar to the one we live in now; but with a bigger basement apartment for me. After all, I will be living in a new state- not exactly sure about the disability advocacies they have to offer.

Today's topic was inspired by yesterday's service at my church. The sermon was entitled: The Gospel of Grace. In Galatians 2, the power of Grace is explored. At first glance, he is amazed at the work being done and commends them. On the other hand, Paul warns the disciples about the danger they are encountering by trying to follow all of God's commandments. In this case, it's excluding the Gentiles. He reminds them that although God's commandments are important; it's not the goal. The laws are important because they point out a need for a Savior- a need for Jesus.

Thinking upon this, I was reminded to keep a careful eye on my objective in doing this blog.

While I do write in this blog on a daily basis, I have to make sure my heart remains in it for the right reasons. I don't know what I'm getting at exactly, the strange thing is I knew what I wanted to say on Sunday, when I thought about writing this.. maybe you can make more out of yourself.

Another thing, the 39th Carnival blog is up. Ironically, the topic is disability and faith/religion. Hope you enjoy! http://disstud.blogspot.com/2008/05/disability-blog-carnival-38-is-up-now.html

Until next time,

Debbie

Grown-up Girlfriends Part 4

Okay,

In this chapter, we learn that every relationship is different. For each relationship, we achieve different levels of intimacy. The levels of intimacy are:

· Cliques
· Facts
· Opinions
· hopes and dreams
· feelings
· faults, failures and fears
· legitimate needs

Reading further, I learn that not all friends are on the same level. Nor should they be. Each relationship can serve different purposes for different people. The more intimate levels are harder to maintain, but more substantial.

To be more clear, the authors used the basket analogy to illustrate. Putting all friendships in one basket makes the relationship too stressful for both of you. Also, it doesn't give the friendship a chance to shine. Because you are too busy trying to make everything perfect. For example, I will highlight the most intimate stages of friendships. Baskets one and two.

In basket two, you have five to twenty friends . You talk beyond the surface with these friends. You share opinions and facts, often moving between levels.

Basket one holds one to four friends . These are your closest friends. You share your hopes and dreams. These are your friends of the heart; although they require the most time and trust, they are the most rewarding.

People With Disabilities are getting the recognition they deserve!

Happy Memorial Day, everyone!

Let me start this post by saying I'm sorry it's so late. I was able to spend the day enjoyably, surrounded by family. Besides the continuous worry over househunting, we were actually able to take a break from it all and spend time together . For example, we headed out on Saturday for a adventurous trip to Cedar Point. It was truly just that -an adventure! Both coming and going ..

On to today's post, I really don't know how to explain it, but I think the link explains itself. Take a look..

http://www.patriciaebauer.com/2008/05/25/hows-your-news-to-mtv/

Reflections on my current situation

Okay,

So lately I've realized strange circumstances causing me to reflect back on the changes have been in my life. I thought I would share just one of these with you. I came upon this post while I was simply searching for new material to talk about, but it ended up being just what I needed for the day. You know what they say God always provides us with the while we need rather than what we want. After all, he knows us better than we know ourselves. It's trusting in the relationship that's the hardest part.. That goes without saying.

Unlike people, God's promises last. People may have the best intentions, but they are prone to make mistakes. For more information on why God's promises are everlasting, see one person's view at:

http://lifefaithdisability.wordpress.com/2008/05/21/god-in-your-desert/

Encouragement: Blessings From Readers

Okay ,


Today is starting to look up, thanks to my readers. As you know, moving is turning out to be a difficult change for me. Leaving my friends, the life I created for myself here etc. Anyway, I was feeling down yet again. But thanks to a reader who commented on my page, I was forced to look back on a earlier posts. That post featured inspirational quotes from famous people such as Helen Keller. The quotes that impacted me the most today were as follows:


6. No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit.
8.When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has been opened for us
9.When we do the best that we can, we never know what miracle is wrought in our life, or in the life of another

That being said I just wanted to let you know your comments do mean a lot to me. They remind me why I do this blog and are such a big encouragement like a unexpected sunshine on a rainy day. Just to know I am reaching some one makes all the difference for me on my rough days. So thank you.

Living the dream, despite a disability

Everyone,



I hope everyone enjoyed my words of wisdom from last week. I forgot to pre-post on Friday, I'm sorry. My trip was eventful, starting with the birth of my second niece, Rebekah Lee and continuing with our various househunting adventures. As time goes on, I have become more convinced that events like these serve as "transitions" as we maneuver through the many different stages of our lives. These not only challenge our thinking and our way of life, but help us to mature as adults. In the end, the move does have family oriented goals, but I can't ever forget who I am and what I want from it...or I will forget myself and my dreams for the future.



Anyway, sorry for the ramble. These are just occasional thoughts that I have to get off my chest. I'm sorry also for posting this a day late, it's just that I have been overcoming a cold since I returned. As a result, I am not feeling very creative. But I was able to find this little gem of wisdom on the Internet. I thought it appropriate since the Olympics is coming up. The video features an unlikely runner trying his best to live a normal life, and accomplish the impossible despite the pessimism of others.

Please take a look:

http://video.msn.com/video.aspx?mkt=en-us&vid=8d590c86-01b9-4f62-9cc8-b08c2fd59e02&fg=rss&from=im_m_35-49

Encouragement: Truly Loving Someone

Hello,

Here is installment number two for this week. This post was brought to you by my Google alerts. One of the links offered in my e-mail was related to the importance of truly loving someone with a disability. The author has a interesting and worthy prospective on the issue. Please feel free to take a look.

The website can be accessed at:http://lifefaithdisability.wordpress.com/2008/05/05/outdo-one-another/

Important message on the Pledge of Allegiance

Hello everyone

Over the next week, you will notice some interesting posts. This is because I will be out of town. My family and I are headed to Virginia to accomplish a variety of tasks. The first and most important, I may actually be there for the birth of my second niece, Rebecca Lee. We may be also looking at houses.

Thankfully, that doesn't mean my readers have to go without my "words of wisdom" for a week. I can put posts up to be published for a later date. As a result, here is my first installment. I was given this as a forward from a friend. This e-mail highlights the daily significance of those freedoms that we often take for granted. As a matter of fact, many of these freedoms are a issue of controversy right now. One of those being the Pledge Of Allegiance. Here is one presidential candidates view. In the words of John McCain:

John McCain's remarks about the Pledge of Allegiance


In light of the recent appeals court ruling in California , with respect to the Pledge of Allegiance, the following recollection from Senator John McCain is very appropriate:


'The Pledge of Allegiance' - by Senator John McCain
'As you may know, I spent five and one half years as a prisoner of war during the Vietnam War. In the early years of our imprisonment, the NVA kept us in solitary confinement or two or three to a cell. In 1971 the NVA moved us from these conditions of isolation into large rooms with as many as 30 to 40 men to a room.

This was, as you can imagine, a wonderful change and was a direct result of the efforts of millions of Americans on behalf of a few hundred POWs 10,000 miles from home.

One of the men who moved into my room was a young man named Mike Christian.
Mike came from a small town near Selma , Alabama . He didn't wear a pair of shoes until he was 13 years old. At 17, he enlisted in the US Navy. He later earned a commission by going to Officer Training School Then he became a Naval Flight Officer and was shot down and captured in 1967. Mike had a keen and deep appreciation of the opportunities this country and our military provide for people who want to work and want to succeed.

As part of the change in treatment, the Vietnamese allowed some prisoners to receive packages from home. In some of these packages were handkerchiefs, scarves and other items of clothing.

Mike got himself a bamboo needle. Over a period of a couple of months, he created an American flag and sewed on the inside of his shirt.

Every afternoon, before we had a bowl of soup, we would hang Mike's shirt on the wall of the cell and say the Pledge of Allegiance.

I know the Pledge of Allegiance may not seem the most important part of our day now, but I can assure you that in that stark cell it was indeed the most important and meaningful event.

Two perspectives on Mother's Day

Everyone,

With Mother's Day fast approaching, I thought I would focus today's blog on just that. Mothers. I don't know about you, but I don't think I could ever live without mine. I have always loved my mother. For how dependable she is and how she always cares for me. That will never change no matter what circumstances may bring. Over the years, though, I've seen it develop into something different. Something deeper than I ever imagined could happen. A friendship. Today, she not only see me as her daughter. But as a woman with the same dreams and desires as anyone my age.

This idea got me thinking..There are in fact two different ways for me and just about anyone to look at Mother's Day. The first perspective is the most obvious. Taking the day to honor our mothers, for the women they are and the lessons they've taught us. These can be unique among families; for me, the lessons consisted of three important categories.

• Faith
• Endurance
• Perseverance

Growing up in my mother's friendship, I have learned to appreciate my mother's stories. They have taught me much about my family history, helped to explain how I react to things, and explain what traits have been passed down from generation to generation. I have also learned to view my mom as the individual she is. Too often, it is difficult to separate one's position from the individual. Don't get me wrong, she will always be my mother. But she is a woman first and foremost. She has the same types of fears, hopes and dreams that I do. It took me a while to realize this, but once I did.. wow , everything changed. I began to see my mother in a different light. I don't know, how it happened.. but it did. Slowly..

One particular moment I remember is in the day she decided she was going to learn to play the piano. She was so determined. She wasn't going to let anything stop where from accomplishing this lifelong dream. After only briefly discussing this with us, there was a piano in our front room. And to this day, you can hear her practicing her scales whenever possible. She is getting pretty good actually, for as much as we tease her about it. Sorry mom.

On the other hand, I have also began to to view Mother's Day in a more womanly way. Some day, I hope to have children of my own. That's a dream of mine, but if I can't, I realize I have a even bigger opportunity to touch people's lives through the opportunities God gives me in the future. This is exactly what happened to Joni Erickson tada. She was able to touch the lives of so many just through her work with Child Evangelism Fellowship.

For more information on the organization, go to. Http://www.cefonline.com/

The sparrow

Pop quiz..

Do these words sound familiar?

"I sing because I'm happy, I sing because I'm free. For His eye is on the sparrow and I know he watches me."

This popular refrain as well as complete song was written by Civilla D. Martin in 1905. That song as well and many others remains a constant source of hope and strength for Christians today. Looking further, the lyrics bear a strong resemblance to that of Matthew 10: 29. In this verse, Christians are reminded that nothing happens without God's permission- that's what makes him sovereign. On a personal level, this weekend has taught me that simple lesson. I'm still trying to comprehend why things are happening the way they are, and why I'm reacting to them the way I am. As the result, I think I am going to take a few days to sit back and reflect on my life.

So please don't worry..

You can also go to http://library.timelesstruths.org/music/_/Martin_Civilla_D/?sortby=author
to find other inspirational songs

God go with you,
Debbie.

Encouragement: Beauty Queen "walks" the runway, despite having Cerebral Palsy

Okay,

For those of you who check my updated links, you may have noticed the one that I found about a beauty contestant having a disability. Well, I found more about the contestant in a recent article. For more information, you can view the article at:

http://jfactivist.typepad.com/jfactivist/2008/04/first-contestan.html

Grown-up girlfriends, part three.. Chapters 2

Okay,

So I know it's been awhile since my last "Grown-up Girlfriends" notes. I haven't really had time to read the book, let alone write notes from it. So much so that I'm afraid I have forgotten all of the lessons I have learned from it far. That being said, here are just some of my notes on chapter 2 and 3 of the book.

• What are characteristics of "Grown-Up Friendships"?
  


• People who encourage us to grow in our faith- to be more like Jesus
  I Corinthians 13: 11
  Galatians 5: 22 - 24
  


• To do this, we must accept two premises:we must take seriously the goal of becoming stronger and wiser in Christ.second, we must learn to recognize the same characteristics of a growing Christian in other people


• Some specific characteristics of a grown-up friend
  deep trust, someone who can look at your heart
  someone who can speak the truth in love
  this means that she is able to work through problems, not around them


• it is important to remember the purpose in every one of your grown-up friendships. On page 29 of the book, the authors quote Christian motivational Speaker, Rick Warren as saying, "focusing on yourself will never reveal your real purpose. You were made by God and for God, and until you understand that your life will never make sense. Only in God do we discover our orgin, our identity, our meaning, our purpose, our significance and our destiny"


• Recognizing the purpose of every relationship, has its benefits
  1. It takes the focus off you. It's more about what God is doing through you
  2. It can reduce feelings of rejection in the friendship
  3. It can bring hope and meaning into the relationship, this is especially helpful when the hard times roll around.


• That being said, pay attention and actively listen to your friends, your purpose may be revealed in a conversation. You never know how your presence is being used at that moment to be of encouragement and comfort
• God is in control- recognizing this makes it easier for us to realize that in everything we see, we should see him. Likewise, our friend should be able to look at us and see Christ.
• In creating grown-up friendships, it does reduce the possibility of rejection. Why? Because we have to take responsibility for our own well-being and emotional health rather than relying on our friend to provide it for us.
• Ultimately, our purpose should be to glorify God in everything that we do. If we realize this, every friendship should have a goal. Focusing on God instead of ourselves
• One last comment on chapter 2 on page 36: the grown-up friend honors God by encouraging her friend to become all He wants her to be

Rolloff family on Oprah

So,

The Rolloff family was on Oprah. I believe I've talked about their show on TLC many times for a previous posts on this blog. In synopsis, the show follows the life of a family affected by dwarfism . This family of five is made up of three average size children (Molly, Jacob and Jeremy) as well as Zach who takes after his parents. They are both little people. Despite their disability, nothing stops this family. During their show, they have taken family vacations to such places as Hawaii and the Grand Canyon.

During its three-year run, "Little People, Big World " has tried to show the American people that people who are different can in fact lead productive lives and can be an inspiration to you if you just take the time to get to know them-starting from the inside and then working your way out. At the family, they have learned to overcome their daily struggles by adapting what they can't do into something that can. One example of this is when Amy was younger-she was able to climb on the grocery shelf to get what she needed. A little adventurous, but it worked. They have learned to adapt to their circumstances instead of just giving up.

The head of the family (Matt) is your average businessman who travels. As well as owning a pumpkin farm, he is also the founder and creator of Direct Access Solutions -a company bent on making hotels more accessible for little people. Amy is your average homemaker and a soccer mom rolled into one.

Fast paced times in Chicago

Well,

I'm back from a whirlwind trip to Chicago. My friends and I had some good times, but unfortunately we brought home with us all colds. I guess that's why they call it the Windy City. Since returning, I thought I would give you an overview of the weekend and how accessible they were. I was going to post a few pictures, but unfortunately, every time I try to it comes up with a "internal error" message. Oh well.

For starters, we arrived in Chicago on Saturday afternoon after four hours on the road. My friend had already made arrangements for us to stay at the Best Western at Grant Park. They were pretty good considering the circumstances. Apparently, there had been a mixup with the reservations; they had us for one night in two rooms instead of the other way around. But the manager was helpful in clearing up the problem. But because of the mixup, we weren't able to get a handicapped accessible room. Anyway, the rest of the day was spent relaxing and dining at the hotel restaurant.

On Sunday, we got up around 11 a.m. and hit the town. Our first stop was the Sears Tower. Originally, this building was the tallest building in America until it was surpassed by some building in China. It was a long ride up in the elevator-about a hundred floors up. Surprisingly, it only took about five minutes to get all the way up to the top. Our ears were popping the whole time.. You could see just about everything from up there-even where Oprah lives. She lives on top of the Hancock building in Chicago. Our next stop was the Shedd Aquarium. That was fun; the place was huge and we ended up getting ourselves lost a couple of times. After that, we needed some energy. So what did we do? We ended up going to the Hershey company. Can we say, "a slice of heaven on earth?"

I could go on and on about the trip, but honestly my voice is getting tired and I should conserve my energy for when I really need it. Those were just some of the activities that occurred during the famous "Road Trip". The trip wasn't really that expensive in the end, considering my friend had gotten us Chicago Go cards . These gave us access to most of Chicago's attractions for a reduced rate or even free.

New treatment for those with spina bifida

Hello everyone,

In a matter of days I will be heading out of town for my birthday. As a result, there will be no Monday post. But I'm sure you can do without me for one day, right?

Anyways, on to today's post. I came across a interesting report last night. Investigated by Lila Lazarus, a new " Health Works " reported on a new treatment for spina bifida. Today, approximately 3000 children are born with this disability. In simple terms, spina bifida happens when the spine never completely develops during birth. As a result, this often creates difficulty when helping with personal care, such as the toileting. That is all about to change however with the help of surgery. During the surgery, nerves are taken from a child 's leg and rerouted to the bladder. Surgeries like these are being done down at the Beaumont Hospital. So far, there is a 90% success rate.
--



Citation for TV Program: "Health Works" News segment Lila Lazarus reporting Fox2 News. Channel 2 WDIV Detroit, News at 10 pm, April 17, 2008

Birthday reflections

Well,

It's hard to believe but in less than a week I will be 28 years old. In those 28 years, I have accomplished a lot. Graduating from college, getting a job, and living on my own just to name a

few. For some, this may seem like small little feats. But it's really not. As part of the disabled community, we consider even the simplest hurdles accomplishments.

I have learned to take each day as it comes, often considering it for the lessons they can teach me . These lessons were invaluable to me in so many ways. They have helped me to develop in both a personal (emotionally, and as a individual) and professional level. Professionally, I hope I can have the opportunity to share what I have learned with others in my situation; my way of giving people hope that anything is possible.

It is not without a little fear that I approach the next year of my life. After all, it looks like I will be moving with my family to Virginia. With that, brings obvious changes- a new home, new friends . But it also brings new opportunities. From the beginning, I have told my readers I am not the best when it comes to change. That part of me hasn't changed and I don't think it ever will. I have minor concerns about moving; after all, it was here that I spent a majority of my life. (I don't know about you, but I consider the later years important ones). It is then that you began to figure and what you want in life. At least that's what happened with me. Still, I am believing this will be the best thing for all of us.

Although, fear can be a good thing in the end. It can push you to do things you never expected it you would do and take you to new heights. It just depends on how you look at life. Will the glass be half full or half empty. You can decide. It also can show you where your dependence lies- is it based on faith or security? I will admit, I'm not perfect. I do have personal goals that have yet to be met. And that, in itself, scares me. As humans, we tend to evaluate ourselves. By our own standards and the standards of the world. We forget what really matters. Loving people and passing on the lessons we have learned to them

In the future, I hope to have accomplished most of my personal goals and have a family while continuing my passion for writing.

Dyslexia

Hello everyone ~

During the weekend, Bruce Jenner hosted a informative report on dyslexia on PBS. Unfortunately, dyslexia is not often seen as a disability; however, one out of ten Americans are impacted by the reading disorder. Jenner, being just one of the people impacted by the disorder.

This PBS special highlighted dyslexia and the many other issues impacting the education of young children today. According to the program, over 50% of all intercity schools read below their grade. As a result, this has led to a rise in dropouts during high school. In all, approximately 3000 children have been placed in special education classrooms- simply because they can't read. Many of them are later diagnosed with dyslexia.

Simply put, dyslexia can be defined as "difficulty with language. "Discovered by Orten over a century ago, it continues to be seen as a neurological disorder. In other words, language can be seen as a complex code; in order to decipher words, we must connect different combinations of letters to the sounds they make. In most cases, this is done automatically by the brain . For others, though, the process is more difficult.